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We Are Visible – Meet Jojo

Frontalaufnahme einer Frau mit braunen Haaren, die auf beiden Seiten zu einem Zopf gebunden sind. Sie trägt einen warmen Wintersweater.


We Are Visible is a feature-length documentary film about people all around the world living with Ehlers-Danlos syndrome. Today, I invite you to get a look at one of the incredible humans in this film: Jojo.

Jojo is a mom of five children. She and four of her children have EDS. When she shared a video of her daughter’s bendy joints on YouTube at the end of 2012, she was accused of child abuse (FII) and 12 months of investigation followed. Jojo was cleared of all accusations in 2014, and since then she has been raising awareness for these common issues in the UK. Even though her case was closed and her daughter has been diagnosed with EDS besides other illnesses, Jojo is continuously questioned about FII. 

In this video, Jojo explains how she feels about this never-ending fight to clear her name all over again.

We Are Visible - Meet Jojo
Watch this video on YouTube.
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We Are Visible – Coming soon…

If you want to learn more about this film project,

have a look here.

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