Karina Sturm
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Guides

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As editor-in-chief for Chronic Pain Partners’ newsletter, I have been putting together guides to help people with EDS navigate the diagnostic process as well as the management of EDS and some of its comorbid conditions. Stay tuned for more guides! 

Cervical Spine Instability Patient Guide

Dysautonomia Patient Guide

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Welcome to my website!

Black and white photo of Karina, a woman with 7 mm shaved hair and huge round earrings.

Karina Sturm – journalist, filmmaker, writer, and professional patient

Karina is a multimedia journalist from Germany who used to live in San Francisco. She is a lab technician turned journalist with a focus on chronic illness/disability representation in the media and received her MA with Distinction in international journalism from Edinburgh Napier University in Scotland. She loves Sushi, Heavy Metal, the ocean and dogs!

Would you like to support my work?

Popular
  • Side view of a woman with short, brown hair holding a camera with a big microphone in front of her face and filming out to the ocean.Frank Marx
    Coming soon: Documentary film about the Ehlers-Danlos s...3. April 2019 - 0:46
  • White letters on black background: You are faking it
    We Are Visible – Trailers26. July 2019 - 18:07
  • Karina, a woman with super short brown hair is wearing a black hat and has her hand on top of the hat to take it off. She wears huge, feather-like earrings and lipstick.
    How it all began: Getting diagnosed with Ehlers-Danlos ...13. March 2021 - 22:50
  • Black and white photo of Karina, a woman with 7 mm shaved hair and huge round earrings.
    Let’s get real. This is how 2020 really was for me.18. March 2021 - 23:55
Recent
  • A bright background with a serious looking girl in the foreground. She has long blonde hair and brown eyes. Title: Take care of Maya
    New Netflix Documentary ‘Take Care of Maya’...25. June 2023 - 16:56
  • A female doctor with a blue surgical robe and a blue cap holding up a purple stethoscope.
    Mastering Appointments Successfully With EDS13. June 2023 - 17:27
  • Caitlin, a woman with long red hair is sitting on a chair in her backyard. The sun is shining. She wears a blue shirt and sits in front of a gigantic orange tree with lots of oranges and green leaves.
    We Are Visible (Too), Episode 2: Caitlin O’Donnell5. June 2023 - 17:05
  • Billie Eilish, a woman with black shoulder-long hair all dressed in black.
    6 Popular People With Ehlers-Danlos Syndrome13. May 2023 - 13:57
Comments
  • Hi Molly, I hope you enjoy it. Let me know what you think....31. July 2021 - 13:25 by karinabutterfly
  • Hi Molly, I am so sorry for your loss. :( Sending you gentle...31. July 2021 - 13:25 by karinabutterfly
  • just rented the movie!! can’t wait to watch28. July 2021 - 0:47 by Molly Tennen
  • thank you so much.. i started getting sick at age 18, i’m...28. July 2021 - 0:45 by Molly Tennen
Tags
actor advocate Anxiety Autism Awareness Belo Cipriani Blindness Chronic illness Chronic pain Connective Tissue Disorder Coping Disability Disability Film Disabled Journalist EDS Clinic Ehlers-Danlos syndrome Exercise Featured film release Folate Genetic condition hEDS heds Gene Hollywood Ian Harding International Interviews Invisible Disability Invisible illness Journalists MCAS Medical article Misdiagnosis MTHFR Newsletter Norris Lab nursing home Podcast Rare Disease Review San Francisco/Bay Area Science Stories of chronically ill Tulane University USA

Watch WE ARE VISIBLE!

My documentary highlighting the challenges people with Ehlers-Danlos syndrome all across the globe face can be watched online now.

VIMEO ON DEMAND

Chronic Pain Partners Post (EDS Newsletter) – In collaboration with EDS Awareness

A portrait shot of Karina, a woman with short, 10 mm shaved, brown hair and huge, feather-like earrings sits in her kitchen.

The shackles that are my disease force me to keep looking down;
every day anew, I break these chains,
raise my head and make a step forward
 

– Karina Sturm – 
Journalist, Writer, Advocate
 

Chronic Illness & Disability 
 

Copyright - Karina Sturm - Enfold Theme by Kriesi
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