Posts

In conversation with Ian Harding: actor, author, activist
In my role as journalist for ABILITY Magazine and as advocate for the Ehlers-Danlos community, the German organization Chronisch Cool contacted me and connected me to Ian Harding, better known as Ezra Fitz in Pretty Little Liars. Ian is…

Watch ‘We Are Visible’ online ON DEMAND
My documentary film ‘We Are Visible,’ featuring people living with Ehlers-Danlos syndrome all across the globe, is now available ON DEMAND.
Unfortunately, due to COVID-19, most events and film screenings for ‘We Are Visible’…

A Rare Disease Advisory Council and Ombudsperson for California!
A few weeks ago, I met Jacob Fraker, a legislative aid of Assemblymember Susan Eggman at the California State Capitol. More importantly, Jacob is part of the rare disease community as well. He has been living with the rare genetic condition…

Impressions: We Are Visible at Chapman University in Orange, CA
We Are Visible Filmscreening at Chapman University in Orange, CAProf. Beth Haller & Filmmaker Karina Sturm
I had the great honor to present my film followed by a short Q&A at Chapman University in Orange, CA. Organized by social…

Press about ’We Are Visible’
Interviews and Podcasts:
EDS Awareness Podcast with Dr. Linda Bluestein
I had the honor to be interviewed by Dr. Linda Bluestein, an EDS expert for a podcast featured by EDS Awareness. In this interview, we discuss the challenges of making…

We Are Visible – Film Awards, Competitions, and Festivals
'We Are Visible,' my first feature-length film about people living with Ehlers-Danlos syndrome all across the globe was accepted into smaller film competitions and awards. Look how well my documentary did.
Los Angeles Film Awards September…

FAQs – We Are Visible
What can I expect of ’We Are Visible’?
’We Are Visible’ is a student film and part of my journalism degree's MA thesis. I am also disabled and live with Ehlers-Danlos syndrome and related conditions myself.
As part of my program,…

Screening Events ’We Are Visible’ – Ehlers-Danlos Documentary
I am inviting the Ehlers-Danlos community to join me for several screenings of my feature-length film ’We Are Visible,’ which shows a variety of people living with Ehlers-Danlos syndrome and related conditions all around the globe.
We…

We Are Visible – Trailers
Many of the people who know me well would tell you that I am not a person that can do ”short.” I like to talk a lot, prefer to write long articles - the more words, the better, and love to involve more than one person in order to show a…

”Nothing about us without us!” – Producing ’We Are Visible’
My film We Are Visible, a feature-length documentary about people living with Ehlers-Danlos syndrome all around the globe, is in its final production phase, and it would be the time to release a trailer now.
However, putting together…

Ehlers-Danlos documentary: Meet the people involved
We Are Visible is a documentary film about people all around the world living with Ehlers-Danlos syndrome. Today, I invite you to meet the main contributors of my film.
Ashley & Sophia
Ashley
Ashley is a mom of two, and they…

Behind the Scenes: Meet the Filmmaker
We Are Visible is a documentary film about people all around the world living with Ehlers-Danlos syndrome (EDS).
Furthermore, it also involves a filmmaker that has EDS herself and therefore knows exactly what living with this invisible…