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Picture of a red phone and a notebook — Contact me

Germany

Karina Sturm

Am Sand 13

92318 Neumarkt

USA

San Francisco, CA

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Bild: Pixabay

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Welcome to my website!

This is me, Karina – journalist, author, writer, and professional patient

I love the ocean, food (a lot) and, above all, writing, where I try to combine medical and scientific facts with human experiences. When I am not writing something, I am a professional patient, seeing my doctors concerning one of my chronic illnesses.

Popular

Frank MarxComing soon: Documentary film about the Ehlers-Danlos s...3. April 2019 - 0:46
Firsts – Episode 2: Caitlin Hernandez2. October 2018 - 2:29
Firsts – Episode 3: Sam E. Rubin2. October 2018 - 2:30
We Are Visible – Trailers26. July 2019 - 18:07

Recent

We Are Visible – Film Awards, Competitions, and F...9. October 2019 - 0:31
Jürgen GrunertWhat other people say about ‘We Are Visible’...22. September 2019 - 23:01
PixabayFAQs – We Are Visible7. September 2019 - 21:43
PixabayScreening Events ’We Are Visible’ – Ehlers-Danlos...30. August 2019 - 2:22

Comments

Hi Michelle, I am so sorry your son's teachers don't understand....21. August 2019 - 22:26 by karinabutterfly
My 11 year old son has EDS, he has a 504 for school but...16. August 2019 - 0:12 by Michelle Van Keulen
Hi Jen, thanks so much for your kind words. I am so...26. July 2019 - 18:06 by karinabutterfly
Thank You for doing this doc. I am a 48 year old living...25. July 2019 - 0:17 by Jen Struk

Tags

AIDS Amputation Anxiety Athlete Autism Awareness Belo Cipriani Blindness California cannabis Chronic illness Chronic pain collaborative Crystallization Disability Disability Film Disabled Journalist Edinburgh Napier Ehlers-Danlos syndrome Genetic condition Germany Group project HIV hospital International Invisible illness Journalists Journos from the blog Laguna Honda Medical article medical marijuana Misdiagnosis Newsletter Opioids Outrigger skiing Paralympics Prosthesis PTSD Rare Disease Salmonella San Francisco/Bay Area Sports Stories of chronically ill Tenascin X USA

My websites

My German Blog

Cervical spine instability and Ehlers-Danlos syndrome

Find me on social media

Work I admire

Belo Cipriani - blind journalist

Cheryl Green’s film ‘Who Am I To Stop It’

Jarrod Sport - Media Professional

Haben Girma - Disability Rights Lawyer & Speaker

Disability Visibility Project

Disability Rights & Eduction Fund

EDS Awareness

Columbia Journalism Review

Beth Haller - Professor, media & disability scholar

Raul Krauthausen - activist for inclusion

The Mighty

Patientworthy

I fucking love science

Strength/Flexibility/Health/EDS

The Malleable Mom

Journos From The Blog

Joanna York - Journalist

Fat Brestovca - Presenter, Journalist, Filmmaker

Close-up face woman brown, short hair, big black glasses

The shackles that are my disease force me to keep looking down;
every day anew, I break these chains,
raise my head and make a step forward

– Karina Sturm – Journalist, Writer, Advocate

Chronic Illness & Disability

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