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Picture of a red phone and a notebook — Contact me

Germany

Karina Sturm

Am Sand 13

92318 Neumarkt

USA

San Francisco, CA

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Bild: Pixabay

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Welcome to my website!

This is me, Karina – journalist, filmmaker, writer, and professional patient

I love the ocean, food (a lot) and, above all, writing, where I try to combine medical and scientific facts with human experiences. When I am not writing something, I am a professional patient, seeing my doctors concerning one of my chronic illnesses.

Popular

Frank MarxComing soon: Documentary film about the Ehlers-Danlos s...3. April 2019 - 0:46
We Are Visible – Trailers26. July 2019 - 18:07
PixabayScreening Events ’We Are Visible’ – Ehlers-Danlos...30. August 2019 - 2:22
Firsts – Episode 2: Caitlin Hernandez2. October 2018 - 2:29

Recent

We Are Visible – Film Awards, Competitions, and F...9. October 2019 - 0:31
Jürgen GrunertWhat people say about ‘We Are Visible’22. September 2019 - 23:01
PixabayFAQs – We Are Visible7. September 2019 - 21:43
PixabayScreening Events ’We Are Visible’ – Ehlers-Danlos...30. August 2019 - 2:22

Comments

Hi Jason, I would love to help you set up a screening....17. November 2019 - 19:19 by karinabutterfly
Thank you so much, Rebecca! I know what you mean by "it's...17. November 2019 - 19:17 by karinabutterfly
Hi Jonathan, thanks so much for your kind words! I truly...17. November 2019 - 19:16 by karinabutterfly
I am a chronic pain patient (fibromyalgia) and advocate...10. November 2019 - 15:17 by Jason Herterich

Tags

AIDS Amputation Anxiety Athlete Autism Awareness Belo Cipriani Blindness California cannabis Chronic illness Chronic pain collaborative Crystallization Disability Disability Film Disabled Journalist Edinburgh Napier Ehlers-Danlos syndrome Genetic condition Germany Group project HIV hospital International Invisible illness Journalists Journos from the blog Laguna Honda Medical article medical marijuana Misdiagnosis Newsletter Opioids Outrigger skiing Paralympics Prosthesis PTSD Rare Disease Salmonella San Francisco/Bay Area Sports Stories of chronically ill Tenascin X USA

My websites

My German Blog

Cervical spine instability and Ehlers-Danlos syndrome

We Are Visible - Official Film Site

Watch ‘We Are Visible’

Find me on social media

Work I admire

Belo Cipriani - blind journalist

Cheryl Green’s film ‘Who Am I To Stop It’

Jarrod Sport - Media Professional

Haben Girma - Disability Rights Lawyer & Speaker

Disability Visibility Project

Disability Rights & Eduction Fund

EDS Awareness

Columbia Journalism Review

Beth Haller - Professor, media & disability scholar

Raul Krauthausen - activist for inclusion

The Mighty

Patientworthy

I fucking love science

Strength/Flexibility/Health/EDS

The Malleable Mom

Journos From The Blog

Joanna York - Journalist

Fat Brestovca - Presenter, Journalist, Filmmaker

Close-up face woman brown, short hair, big black glasses

The shackles that are my disease force me to keep looking down;
every day anew, I break these chains,
raise my head and make a step forward

– Karina Sturm – Journalist, Writer, Advocate

Chronic Illness & Disability

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