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Picture of a red phone and a notebook — Contact me

Germany

Karina Sturm

Am Sand 13

92318 Neumarkt

USA

San Francisco, CA

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Welcome to my website!

This is me, Karina – journalist, author, writer, and professional patient

I love the ocean, food (a lot) and, above all, writing, where I try to combine medical and scientific facts with human experiences. When I am not writing something, I am a professional patient, seeing my doctors concerning one of my chronic illnesses.

Popular

We Are Visible – Trailers26. July 2019 - 18:07
Frank MarxComing soon: Documentary film about the Ehlers-Danlos s...3. April 2019 - 0:46
Firsts – Episode 2: Caitlin Hernandez2. October 2018 - 2:29
Firsts – Episode 3: Sam E. Rubin2. October 2018 - 2:30
Behind the Scenes: Meet the Filmmaker11. April 2019 - 0:49

Recent

We Are Visible – Trailers26. July 2019 - 18:07
Karina Sturm ”Nothing about us without us!” – Producing ’We...24. July 2019 - 18:09
Ehlers-Danlos documentary: Meet the people involved8. July 2019 - 20:01
Why disabled journalists should report on disability –...19. April 2019 - 23:59

Comments

Hi Michelle, I am so sorry your son's teachers don't understand....21. August 2019 - 22:26 by karinabutterfly
My 11 year old son has EDS, he has a 504 for school but...16. August 2019 - 0:12 by Michelle Van Keulen
Hi Jen, thanks so much for your kind words. I am so...26. July 2019 - 18:06 by karinabutterfly
Thank You for doing this doc. I am a 48 year old living...25. July 2019 - 0:17 by Jen Struk

Tags

AIDS Amputation Anxiety Athlet Autism Awareness Belo Cipriani Blindness California cannabis Chronic illness Chronic pain collaborative Crystallization Disability Edinburgh Napier Ehlers-Danlos syndrome Genetic condition Germany Group project HIV hospital International Invisible illness Journalists Journos from the blog Laguna Honda Medical article medical marijuana Misdiagnosis Newsletter nursing home Opioids Outrigger skiing Paralympics Prosthesis PTSD Rare Disease Salmonella San Francisco/Bay Area skilled nursing care Sports Stories of chronically ill Tenascin X USA

My websites

My German Blog

Cervical spine instability and Ehlers-Danlos syndrome

Find me on social media

Websites I love

The Mighty

Patientworthy

I fucking love science

Rare Daily

Strength/Flexibility/Health/EDS

RehaCare

NY Times Modern Love

The Malleable Mom

Journos From The Blog

Whater - Ordinary People. Extraordinary Stories.

Joanna York - Journalist

Fat Brestovca - Presenter, Journalist, Filmmaker

Close-up face woman brown, short hair, big black glasses

The shackles that are my disease force me to keep looking down;
every day anew, I break these chains,
raise my head and make a step forward

– Karina Sturm – Journalist, Writer, Advocate

Chronic Illness & Disability

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