An illustration of a blue and purple nerve cell and a magnifying glass on yellow background. Text: New research on EDS, POTS & SFN. Small Fiber Neuropathy is a Common Feature in HEDS, Research Finds.
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Small Fiber Neuropathy is a Common Feature in Hypermobile EDS, Research Finds

New research by a German group of scientists published in the European Journal of Neurology seeks to understand  if there is an underlying common cause among hypermobile EDS (hEDS), small fiber neuropathy (SFN), and postural orthostatic tachycardia…
A heart with a knife through its middle.
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#AbleismusTötet: Violence against people with disabilities

What is #AbleismusTötet? #AbleismusTötet is a project initiated by the German disability rights organization AbilityWatch e. V. to uncover all cases of violence against people with disabilities in German care homes. In April 2021, four…
A black and white shot of Jameela, a woman with long black hair who rests her head on her hand
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Interview with The Good Place actress Jameela Jamil

I recently had the pleasure of interviewing actress and advocate Jameela Jamil for ABILITY Magazine. Jameela Jamil is an advocate for social justice, body neutrality, LGBTQ rights, and for a while now, she has also been using her public…
A screenshot of a zoom call with Ian Harding (left), a man with short brown hair and a full beard, and Karina Sturm (right), a woman with shaved brown hair and large, leaf-shaped earrings.
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In conversation with Ian Harding: actor, author, activist

In my role as journalist for ABILITY Magazine and as advocate for the Ehlers-Danlos community, the German organization Chronisch Cool contacted me and connected me to Ian Harding, better known as Ezra Fitz in Pretty Little Liars. Ian is…
Black and white photo of Jade, a young girl with shoulder-long, blonde hair and a tube up her nose. She faces towards her left hand in which she holds part of her IV
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Watch ‘We Are Visible’ online ON DEMAND

My documentary film ‘We Are Visible,’ featuring people living with Ehlers-Danlos syndrome all across the globe, is now available ON DEMAND. Unfortunately, due to COVID-19, most events and film screenings for ‘We Are Visible’…
Cassandra, a woman with long, black hair is buying pharmacy productsTrust me, I'm Sick
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Working for Ability Magazine

I have the great honor to be working with Ability Magazine, one of my favorite publications by and for people with disabilities. Some of my work: Director Sarah Stewart and her all-female crew gave great insight into many of the…
Filmed from the end of a room. In front of the room is a large screen showing 'We Are Visible', Karina's film about Ehlers-Danlos syndrome.Jürgen Grunert
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What people say about ‘We Are Visible’

Writers, Journalists & Disability Advocates Caitlin Hernandez This engaging, poignant film captures the triumphs, trials, and truths experienced by several different people living with the same condition. Viewers will come to…
White letters on black background: You are faking it
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We Are Visible – Trailers

Many of the people who know me well would tell you that I am not a person that can do ”short.” I like to talk a lot, prefer to write long articles - the more words, the better, and love to involve more than one person in order to show a…
Karina, a woman with short, brown hair looks into the nothingness. She sits on stairs in the nature and is seen in profile. She wears four earrings. One of those is a dolphin, and the other one a turtle. Additionally, she wears a white-blue scarf around her neck brace.Karina Sturm
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”Nothing about us without us!” – Producing ’We Are Visible’

My film We Are Visible, a feature-length documentary about people living with Ehlers-Danlos syndrome all around the globe, is in its final production phase, and it would be the time to release a trailer now.   However, putting together…
A collage of 9 teenage and adult women and two children who are all contributors of the film We Are Visible
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Ehlers-Danlos documentary: Meet the people involved

We Are Visible is a documentary film about people all around the world living with Ehlers-Danlos syndrome. Today, I invite you to meet the main contributors of my film. Ashley & Sophia  Ashley Ashley is a mom of two, and they…
Screenshot of the Columbia Journalism Review website. A picture of a laptop, pencil and paper, and der text: "Why disabled journalists should report on disability" can be seen.
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Why disabled journalists should report on disability – Columbia Journalism Review

"Disability reporting needs to improve, and the solution is simple: we need more journalists with disabilities in newsrooms."
Mid-size shot of a woman with short, brown hair and a pink flower in her hair. She is wearing retro-style glasses and a neck brace and talks to a man which we can see from behind.
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Behind the Scenes: Meet the Filmmaker

We Are Visible is a documentary film about people all around the world living with Ehlers-Danlos syndrome (EDS).  Furthermore, it also involves a filmmaker that has EDS herself and therefore knows exactly what living with this invisible…