Logo of the Global Disability News Network
, ,

The Global Disability News Network Launches January 20, 2026

FOR IMMEDIATE RELEASE. The Global Disability News Network Launches January 20, 2026 to Deliver Accessible, Community-Driven Disability Journalism Worldwide [Fort Worth, Texas] — [January 20, 2026] — The Global Alliance for Disability…
Eine Familie auf einem Uni Campus. Alle tragen Boxen und Koffer. Eine Person sitzt in einem Rollstuhl.
,

Netflix’s Run Away Quietly Gets EDS Right: Ambulatory Wheelchair Use

Run Away, Netflix’s latest Harlan Coben adaptation, has many twists and turns. However, for the EDS community, the most meaningful revelation isn’t even a plot. It Is one of the first accurate depictions of an ambulatory wheelchair user. Run…
Plastic PCR tubs with green liquid inside
, ,

New Study Reveals Immune Dysfunction in Hypermobile Ehlers–Danlos Syndrome

The Norris Lab published yet another new research finding regarding hypermobile EDS: the involvement of the complement system. Chronic Pain Partners has recently reported about the Lab’s groundbreaking discovery of Kalikrein, a gene to believed…
A bald man with a white coat is sitting across a desk from another man.
,

“It’s All in Your Head”: New Study Confirms What hEDS Patients Have Been Told for Decades

A landmark study has revealed what most people with hypermobile EDS (hEDS) already knew since disease onset: a staggering rate of psychiatric misdiagnosis among patients with hypermobile Ehlers-Danlos syndrome (hEDS). The study found that 94.4%…
A woman with a bun and an illustration of a spine along her spine
,

New CCI Research: Understanding the Frequency of Neurosurgical Interventions in Connective Tissue Disorders

A recent study conducted by Ruhoy et al. investigates the frequency of comorbidities and the need for neurosurgical interventions in individuals with connective tissue disorders (CTDs), offering valuable insights into the multifaceted challenges…
11 Kapseln mit gelb und schwarzen Partikeln auf einem Tisch.
,

New Pain Killer on the Market: Suzetrigine

Guest Article by Dr. Pradeep Chopra Summary The medicine is sold as Journavx, with the chemical name Suzetrigine. It works by blocking NaV1.8 channels, which are responsible for pain transmission along nerves. It only affects peripheral…
Much More Than That Title
, , , , , , ,

Much More Than That

One-liner: A family’s journey of finding their identity on the intersection of disability and queerness.  Synopsis:  Much More Than That is a 15-minute short film that delves into the lives of the Pollock family, who share…
A golden book cover: Fourth Wing

How Rebecca Yarros’ “Fourth Wing” Embodies Ehlers-Danlos Syndrome 

What if the hero of a bestselling novel shared your struggles—and your strength? Rebecca Yarros’ Fourth Wing, the first book of a fantasy series, follows Violet Sorrengail, a young woman forced to join a brutal dragon rider academy and…
Logo Props No More, which is a purple microphone and text: Disabled Creators Tearing Down Media Barriere
, , , ,

Props No More: Redefining the Scene: Beyond Representation to Authenticity

Props No More is an intersectional documentary produced by GADIM (The Global Alliance for Disability in Media) and highlights disabled creatives and their efforts to change the stereotypical narrative around disability. The feature-length documentary…
A close-up of a woman wearing headphones and speaking into a microphone. She has light brown, shoulder-length hair with blonde highlights. She looks forward with focus as she speaks into a black, professional studio microphone attached to a flexible arm. The background is blurred and neutral.
, , , , ,

Proud Stutter

Summary:  Proud Stutter is a short film featuring Maya, who grew up with a stutter she believed she needed to overcome, embarking on a transformative journey of self-acceptance. Realizing that stuttering is simply another way of…
a hand with purple gloves in a lab with a pipette
,

Norris Lab Finds HEDS Gene: Kallikrein

Chronic Pain Partners is excited to share a significant breakthrough from the Norris Lab regarding hypermobile Ehlers-Danlos Syndrome (hEDS). After a long wait, the research, spearheaded by Dr. Cortney Gensemer, identifying a genetic variant…
The picture shows a young woman with straight, shoulder-length pink hair and glasses, sitting on a bed. She is wearing a light blue hoodie and black pants. To her right, there is a dog lying on the bed. The room has a red wall behind the bed, and there is a framed picture of a cat above the bed. On the left side of the bed, there is a small round mirror on the wall and a bedside table with a lamp. The bedspread is pink and white with a floral pattern.
,

Filmmaker Andrew Abrahams on the New EDS Documentary ‘Complicated’

Chronic Pain Partners' Karina Sturm was honored to speak with Andrew Abrahams, who has been directing the new Ehlers-Danlos documentary Complicated. Abrahams is an award-winning, two-time Academy Award-shortlisted producer/director of…