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A collage of 9 teenage and adult women and two children who are all contributors of the film We Are Visible
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Ehlers-Danlos documentary: Meet the people involved

We Are Visible is a documentary film about people all around the world living with Ehlers-Danlos syndrome. Today, I invite you to meet the main contributors of my film. Ashley & Sophia  Ashley Ashley is a mom of two, and they…
Screenshot of the Columbia Journalism Review website. A picture of a laptop, pencil and paper, and der text: "Why disabled journalists should report on disability" can be seen.
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Why disabled journalists should report on disability - Columbia Journalism Review

"Disability reporting needs to improve, and the solution is simple: we need more journalists with disabilities in newsrooms."
Mid-size shot of a woman with short, brown hair and a pink flower in her hair. She is wearing retro-style glasses and a neck brace and talks to a man which we can see from behind.
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Behind the Scenes: Meet the Filmmaker

We Are Visible is a documentary film about people all around the world living with Ehlers-Danlos syndrome (EDS).  Furthermore, it also involves a filmmaker that has EDS herself and therefore knows exactly what living with this invisible…
Frontalaufnahme einer Frau mit braunen Haaren, die auf beiden Seiten zu einem Zopf gebunden sind. Sie trägt einen warmen Wintersweater.
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We Are Visible - Meet Jojo

We Are Visible is a feature-length documentary film about people all around the world living with Ehlers-Danlos syndrome. Today, I invite you to get a look at one of the incredible humans in this film: Jojo. Jojo is a mom of five children.…
Side view of a woman with short, brown hair holding a camera with a big microphone in front of her face and filming out to the ocean.Frank Marx
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Coming soon: Documentary film about the Ehlers-Danlos syndromes

The Ehlers-Danlos syndromes are a group of rare connective tissue disorders that can affect every part of the body. We Are Visible wants to show the full picture of the condition including the complex presentation of symptoms, to the complications…
Two pictures. On the left is Denise B., a woman wearing a blue shirt, wrist and knee braces. She has short red hair and sits in front of a tree in the forrest. On the right is Rana T., a woman with long brown hair, who has sunglasses on her head, sitting in a park
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Misdiagnoses - an investigative article

Have you ever wondered if you are the only one who has been misdiagnosed by a medical professional in the past? In fact, you are in good company. Diagnostic errors are a global threat, but rarely do we hear about them. For this article, I interviewed…
David-Elijah Nahmod, ein Mann mit Brille und kurzen, welligen, braunen Haaren sitzt in einem Bürostuhl und trägt ein blaues Hemd.
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Firsts - Episode 1: David-Elijah Nahmod

Firsts is a mini documentary series about several authors contributing to the book "Firsts - Coming of Age Stories by People with Disabilities" by Belo Cipriani. Please enjoy Episode One: David-Elijah Nahmod Version with closed captions:  https://www.youtube.com/watch?v=oEuDbmmLQN0 Version…
Belo Cipriani, a young man with black, short hair wears a blue shirt and black jeans and sits on stone steps in front of a sea of pink flowers. One hand lies on the back of his guide dog, a black labrador.
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Firsts - The Mini Documentary Series for Belo Cipriani

I had the honor to work with Belo Cipriani, a blind journalist, and advocate for people living with disabilities. Belo recently established a publishing house called Oleb Books whose mission is to represent disability in a respectful and honest…
The Mighty Logo showing white letters on red background
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Newsletter for The Mighty

Part of my work for The Mighty included creating the weekly Ehlers-Danlos syndrome newsletter. Here are some examples:  EDS Newsletter September 20 EDS Newsletter September 27 Epilepsy Newsletter October 2 EDS Newsletter October…
Screenshot of an article called "23 Consequences Of Misdiagnosis People With EDS Had to Deal With"
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Call-out articles for The Mighty

The following are my pieces based on what the community shared with The Mighty. Many people living with Ehlers-Danlos syndrome need to apply for disability benefits at some point of their journey. This is what they wished the people who decide…
Karina wears a red The Mighty Shirt and a blue flower in her short, brown hair. She is smiling.
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Internship at The Mighty

During September 2018, I had the great pleasure to work as a temporary staff member for The Mighty, the largest online magazine for people living with chronic illnesses and disabilities. The Mighty shares articles written by authors that have…
Karina is holding a sign saying: Yes, we care!

Yes, we care! - A campaign for children with rare diseases

The Care-for-Rare Foundation contacted me a few weeks ago and asked if I wanted to join their new campaign. Of course, I wanted to! And I would like to recommend this project to you. Why? Because the Care-for-Rare Foundation is committed to…