White letters on black background: You are faking it
, , ,

We Are Visible - Trailers

Many of the people who know me well would tell you that I am not a person that can do ”short.” I like to talk a lot, prefer to write long articles - the more words, the better, and love to involve more than one person in order to show a…
Karina, a woman with short, brown hair looks into the nothingness. She sits on stairs in the nature and is seen in profile. She wears four earrings. One of those is a dolphin, and the other one a turtle. Additionally, she wears a white-blue scarf around her neck brace.Karina Sturm
, ,

”Nothing about us without us!” - Producing ’We Are Visible’

My film We Are Visible, a feature-length documentary about people living with Ehlers-Danlos syndrome all around the globe, is in its final production phase, and it would be the time to release a trailer now.   However, putting together…
A collage of 9 teenage and adult women and two children who are all contributors of the film We Are Visible
, ,

Ehlers-Danlos documentary: Meet the people involved

We Are Visible is a documentary film about people all around the world living with Ehlers-Danlos syndrome. Today, I invite you to meet the main contributors of my film. Ashley & Sophia  Ashley Ashley is a mom of two, and they…
Mid-size shot of a woman with short, brown hair and a pink flower in her hair. She is wearing retro-style glasses and a neck brace and talks to a man which we can see from behind.
, , ,

Behind the Scenes: Meet the Filmmaker

We Are Visible is a documentary film about people all around the world living with Ehlers-Danlos syndrome (EDS).  Furthermore, it also involves a filmmaker that has EDS herself and therefore knows exactly what living with this invisible…
Frontalaufnahme einer Frau mit braunen Haaren, die auf beiden Seiten zu einem Zopf gebunden sind. Sie trägt einen warmen Wintersweater.
, , ,

We Are Visible - Meet Jojo

We Are Visible is a feature-length documentary film about people all around the world living with Ehlers-Danlos syndrome. Today, I invite you to get a look at one of the incredible humans in this film: Jojo. Jojo is a mom of five children.…
Side view of a woman with short, brown hair holding a camera with a big microphone in front of her face and filming out to the ocean.Frank Marx
, ,

Coming soon: Documentary film about the Ehlers-Danlos syndromes

The Ehlers-Danlos syndromes are a group of rare connective tissue disorders that can affect every part of the body. We Are Visible wants to show the full picture of the condition including the complex presentation of symptoms, to the complications…
Sam E. Rubin ist ein junger Mann der vor einem Gemälde sitzt, die eine Katze zeigt. Er blickt nach unten und hat grüne Augen mit langen Wimpern. Sein Haar ist braun und wellig, sein Hemd kartiert.
, , ,

Firsts - Episode 3: Sam E. Rubin

Firsts is a mini documentary series about several authors contributing to the book "Firsts - Coming of Age Stories by People with Disabilities" by Belo Cipriani. Please enjoy Episode 3: Sam E. Rubin Version with closed captions:  https://www.youtube.com/watch?v=KYt3ehUk-54   Version…
Caitlin Hernandez, a young woman with brown, straight, shoulder-long hair and brown eyes smiles
, , ,

Firsts - Episode 2: Caitlin Hernandez

Firsts is a mini documentary series about several authors contributing to the book "Firsts - Coming of Age Stories by People with Disabilities" by Belo Cipriani. Please enjoy Episode 2: Caitlin Hernandez Version with closed captions:  https://www.youtube.com/watch?v=VffHRQjCkck Version…
David-Elijah Nahmod, ein Mann mit Brille und kurzen, welligen, braunen Haaren sitzt in einem Bürostuhl und trägt ein blaues Hemd.
, , ,

Firsts - Episode 1: David-Elijah Nahmod

Firsts is a mini documentary series about several authors contributing to the book "Firsts - Coming of Age Stories by People with Disabilities" by Belo Cipriani. Please enjoy Episode One: David-Elijah Nahmod Version with closed captions:  https://www.youtube.com/watch?v=oEuDbmmLQN0 Version…
Belo Cipriani, a young man with black, short hair wears a blue shirt and black jeans and sits on stone steps in front of a sea of pink flowers. One hand lies on the back of his guide dog, a black labrador.
, , ,

Firsts - The Mini Documentary Series for Belo Cipriani

I had the honor to work with Belo Cipriani, a blind journalist, and advocate for people living with disabilities. Belo recently established a publishing house called Oleb Books whose mission is to represent disability in a respectful and honest…
Old Building of the Laguna Honda Hospital in San Francisco with a statue in the foreground.
, ,

Positive Care - a short documentary

Positive Care is a short documentary about the lives of previous and current residents at Laguna Honda's Positive Care Unit in San Francisco.    https://www.youtube.com/watch?v=nTEYPmyXH5g&frags=pl%2Cwn