This author has yet to write their bio.Meanwhile lets just say that we are proud karinabutterfly contributed a whooping 87 entries.
A few weeks ago, I met Jacob Fraker, a legislative aid of Assemblymember Susan Eggman at the California State Capitol. More importantly, Jacob is part of the rare disease community as well. He has been living with the rare genetic condition cystic fibrosis his whole life. His work focusses on health policy, specifically rare disease […]
I have the great honor to be working with Ability Magazine, one of my favorite publications by and for people with disabilities. Some of my work: Director Sarah Stewart and her all-female crew gave great insight into many of the challenges people with chronic illnesses have to face all the time, and by including such […]
One benefit of being a disabled journalist and filmmaker is the passion every member of the community we serve shows for our cause: the accurate representation of disability in media. And as part of this community, I often have the privilege to connect to other journalists or filmmakers with disabilities. This time, while working on […]
We Are Visible Filmscreening at Chapman University in Orange, CAProf. Beth Haller & Filmmaker Karina Sturm I had the great honor to present my film followed by a short Q&A at Chapman University in Orange, CA. Organized by social studies Professor Art Blaser and disability studies expert Prof. Beth Haller, the screening was held in […]
Interviews and Podcasts: EDS Awareness Podcast with Dr. Linda Bluestein I had the honor to be interviewed by Dr. Linda Bluestein, an EDS expert for a podcast featured by EDS Awareness. In this interview, we discuss the challenges of making ’We Are Visible’, my personal goals for the next years, and the plan for future […]
‘We Are Visible,’ my first feature-length film about people living with Ehlers-Danlos syndrome all across the globe was accepted into smaller film competitions and awards. Look how well my documentary did. Los Angeles Film Awards September 2019 LA Film Awards – Official Selection 2019LAFA 60 Best FilmsSemi-finalist, LAFA, Los Angeles Film Awards, 2019Los Angeles Film […]
Writers, Journalists & Disability Advocates Caitlin Hernandez This engaging, poignant film captures the triumphs, trials, and truths experienced by several different people living with the same condition. Viewers will come to care about each character and deeply understand the ways in which illness, the public’s ignorance and prejudice, and both internal and external struggles impact […]
What can I expect of ’We Are Visible’? ’We Are Visible’ is a student film and part of my journalism degree’s MA thesis. I am also disabled and live with Ehlers-Danlos syndrome and related conditions myself. As part of my program, I have produced one short film about a nursing home caring for people with […]
I am inviting the Ehlers-Danlos community to join me for several screenings of my feature-length film ’We Are Visible,’ which shows a variety of people living with Ehlers-Danlos syndrome and related conditions all around the globe. We Are Visible – Coming soon… September 2019 Germany – Bad Kissingen When: September 21, 2019; 8 pm (German […]
Many of the people who know me well would tell you that I am not a person that can do ”short.” I like to talk a lot, prefer to write long articles – the more words, the better, and love to involve more than one person in order to show a variety of perspectives. These […]
My film We Are Visible, a feature-length documentary about people living with Ehlers-Danlos syndrome all around the globe, is in its final production phase, and it would be the time to release a trailer now. However, putting together a trailer turned out to be quite a challenge for me. I kept asking myself: How […]
We Are Visible is a documentary film about people all around the world living with Ehlers-Danlos syndrome. Today, I invite you to meet the main contributors of my film. Ashley & Sophia Ashley Ashley is a mom of two, and they all have Ehlers-Danlos syndrome. In her Blog she talks about living with Ehlers-Danlos syndrome […]
