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One-Liner Where People Understand is a 12-minute short documentary about John Ferman, founder of Chronic Pain Partners/EDS Awareness. It traces his lifelong commitment to building community, support, and understanding for people living with Ehlers-Danlos syndrome and related conditions. Summary The average time to get diagnosed with Ehlers-Danlos Syndrome is 10-14 years. John Ferman knows this […]
FOR IMMEDIATE RELEASE. The Global Disability News Network Launches January 20, 2026 to Deliver Accessible, Community-Driven Disability Journalism Worldwide [Fort Worth, Texas] — [January 20, 2026] — The Global Alliance for Disability in Media and Entertainment (GADIM) today announced the launch of The Global Disability News Network (TGDNN) at GlobalDisabilityNews.org. TGDNN is a collaborative, community-driven […]
Run Away, Netflix’s latest Harlan Coben adaptation, has many twists and turns. However, for the EDS community, the most meaningful revelation isn’t even a plot. It Is one of the first accurate depictions of an ambulatory wheelchair user. Run Away is a dark thriller/drama about Simon Greene, who is searching for his daughter Paige. With […]
The Norris Lab published yet another new research finding regarding hypermobile EDS: the involvement of the complement system. Chronic Pain Partners has recently reported about the Lab’s groundbreaking discovery of Kalikrein, a gene to believed causing hEDS. We shared the initial findings and a later updated version of it. Published in ImmunoHorizons, this additional research […]
A landmark study has revealed what most people with hypermobile EDS (hEDS) already knew since disease onset: a staggering rate of psychiatric misdiagnosis among patients with hypermobile Ehlers-Danlos syndrome (hEDS). The study found that 94.4% of patients were initially misdiagnosed with psychiatric conditions—often by physicians without psychiatric expertise—before receiving an accurate diagnosis of hEDS. Many […]
A recent study conducted by Ruhoy et al. investigates the frequency of comorbidities and the need for neurosurgical interventions in individuals with connective tissue disorders (CTDs), offering valuable insights into the multifaceted challenges faced by this patient population. What’s the study about? CTDs are a diverse group of disorders that impact connective tissue, leading to […]
Guest Article by Dr. Pradeep Chopra Summary What is Suzetrigine? Suzetrigine, marketed under the brand name Journavx, is a novel non-opioid analgesic recently approved by the U.S. Food and Drug Administration (FDA)for the treatment of moderate-to-severe acute pain in adults. Developed by Vertex Pharmaceuticals, Suzetrigine represents the first new class of pain medication approved in […]
One-liner: A family’s journey of finding their identity on the intersection of disability and queerness. Synopsis: Much More Than That is a 15-minute short film that delves into the lives of the Pollock family, who share deep connections that transcend their heritage. Jack and his mother Maria both live with Ehlers-Danlos syndrome, a rare and […]
What if the hero of a bestselling novel shared your struggles—and your strength? Rebecca Yarros’ Fourth Wing, the first book of a fantasy series, follows Violet Sorrengail, a young woman forced to join a brutal dragon rider academy and fighting her way through life-threatening challenges, fierce rivalries, and the unrelenting physical toll of her training. […]
Props No More is an intersectional documentary produced by GADIM (The Global Alliance for Disability in Media) and highlights disabled creatives and their efforts to change the stereotypical narrative around disability. The feature-length documentary begins by examining how disabled people have been marginalized, stereotyped, or entirely omitted from the mainstream media, which shape our understanding […]
Summary: Proud Stutter is a short film featuring Maya, who grew up with a stutter she believed she needed to overcome, embarking on a transformative journey of self-acceptance. Realizing that stuttering is simply another way of speaking, she creates a podcast to amplify the voices of those who share her experience. Through candid conversations, Maya […]
Chronic Pain Partners is excited to share a significant breakthrough from the Norris Lab regarding hypermobile Ehlers-Danlos Syndrome (hEDS). After a long wait, the research, spearheaded by Dr. Cortney Gensemer, identifying a genetic variant associated with hEDS has been published, pinpointing mutations in the Kallikrein gene family. The Kallikrein gene family, known for encoding enzymes […]
