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![The picture shows a person smiling at the camera, wearing a tie-dye shirt with yellow, pink, and blue colors. They have short hair, glasses, and a black neck brace with white trim. On their face, there is a small flower-shaped patch on their right cheek. They are holding up a feeding tube. Behind them is a background of various stuffed animals.](https://usercontent.one/wp/www.karina-sturm.com/wp-content/uploads/2024/04/com-kira1-495x400.jpg)
Complicated – the must-watch documentary on Ehlers-Danlos Syndrome
A new documentary on Ehlers-Danlos Syndrome, Complicated, will soon be released. Chronic Pain Partners was honored to preview the film, which dives deep into many of our community's challenges. Directed by award-winning and Oscar-shortlisted…
![Dr. Wolf, a woman with short, curly brown hair, black glasses and a yellow face mask.](https://usercontent.one/wp/www.karina-sturm.com/wp-content/uploads/2023/04/Dr.-Wolf-Still-495x400.jpg)
EDSed Episode 4: Dr. Jacqueline Wolf on GI symptoms & Endometriosis
EDSed is our new series of full-length interviews with international EDS experts. These educational interview series with journalistic (news) quality is complementary to our webinar recordings and another free resource we provide for our…
![Jacques Courseault, a black man with black hair and black glasses. He wears a blue shirt and a green bow and lifts up the arm of a black woman with a tattoo on her arm in an examination room.](https://usercontent.one/wp/www.karina-sturm.com/wp-content/uploads/2023/04/20221222-Hypermobility-_C2_6783-1-495x400.jpg)
Folate-dependent Hypermobility: Discussing Tulane’s Recent Paper With Their Scientists
A recent publication by researchers at Tulane University hypothesizes MTHFR mutations lead to folate deficiency, resulting in hypermobility. The researchers also propose these mutations may cause or contribute to a form of hypermobile EDS.…
![Many cells connected by extracellular matrix](https://usercontent.one/wp/www.karina-sturm.com/wp-content/uploads/2023/04/connective-tissue-g3a2b31733_1280-495x400.jpg)
Folate-Dependent Hypermobility: Researchers at Tulane’s EDS Clinic Look Into New Possible Mechanism For Hypermobile EDS
A recent publication by scientists at Tulane University's EDS clinic proposes a possible new mechanism behind hypermobility: folate dependency. The researchers hypothesize that MTHFR mutations may lead or contribute to a form of hypermobile…
![Dr. Lilian Holm on EDS & Physical Therapy. Dr. Lilian Holm, a woman with shoulder-long brown hair and bangs, is sitting in her office, which is a large room with a turquoise wall behind her and an open fireplace. She sits on a beige chair and wears a black shirt and a delicate golden necklace. In the background is a treatment bench in the foreground two red flowers.](https://usercontent.one/wp/www.karina-sturm.com/wp-content/uploads/2023/01/Lilian-Holm-495x400.jpg)
EDSed Episode 2: Dr. Lilian Holm on Physical Therapy & EDS
EDSed is our new series of full-length interviews with international EDS experts. These educational interview series with journalistic (news) quality is complementary to our webinar recordings and another free resource we provide for our…
![Two people are sitting in beige office chairs in front of a white wall. Dr. Gensemer is a woman with long, wavy blonde hair. She wears a blue shirt and white pants and has flower tattoos on her arm. Next to her sits Dr. Norris, a man with short brown hair, grey glasses, a blue shirt and a dark blue jacket on top.](https://usercontent.one/wp/www.karina-sturm.com/wp-content/uploads/2022/10/Dr.-Gensemer-Dr.-Norris-495x400.jpg)
EDSed Episode 1: The Norris Lab
EDSed is our new series of full-length interviews with international EDS experts.
These educational interview series with journalistic (news) quality is complementary to our webinar recordings and another free resource we provide for…
![An illustration of a black DNA with a blue circle in the middle and text: Norris Lab.](https://usercontent.one/wp/www.karina-sturm.com/wp-content/uploads/2022/07/The-Norris-Lab-495x400.png)
Interview with Dr. Norris on finding the genetic cause(s) for hypermobile EDS and much more
For Chronic Pain Partners, I had the honor to speak with Dr. Russell “Chip” Norris from the Norris Lab at MUSC, a research laboratory dedicated to finding the genetic cause(s) for the hypermobile Ehlers-Danlos syndrome. Sturm speaks…
![White letters on black background: You are faking it](https://usercontent.one/wp/www.karina-sturm.com/wp-content/uploads/2019/07/5FA6A80B-2467-483F-BACA-77A3B9CD31CA-495x400.png)
We Are Visible – Trailers
Many of the people who know me well would tell you that I am not a person that can do ”short.” I like to talk a lot, prefer to write long articles - the more words, the better, and love to involve more than one person in order to show a…
![Karina, a woman with short, brown hair looks into the nothingness. She sits on stairs in the nature and is seen in profile. She wears four earrings. One of those is a dolphin, and the other one a turtle. Additionally, she wears a white-blue scarf around her neck brace.](https://usercontent.one/wp/www.karina-sturm.com/wp-content/uploads/2019/07/23D62B19-FF7E-4CC0-885E-BCA5E6A7AB51-495x400.png)
”Nothing about us without us!” – Producing ’We Are Visible’
My film We Are Visible, a feature-length documentary about people living with Ehlers-Danlos syndrome all around the globe, is in its final production phase, and it would be the time to release a trailer now.
However, putting together…
![A collage of 9 teenage and adult women and two children who are all contributors of the film We Are Visible](https://usercontent.one/wp/www.karina-sturm.com/wp-content/uploads/2019/07/all-contributors.001-495x400.jpeg)
Ehlers-Danlos documentary: Meet the people involved
We Are Visible is a documentary film about people all around the world living with Ehlers-Danlos syndrome. Today, I invite you to meet the main contributors of my film.
Ashley & Sophia
Ashley
Ashley is a mom of two, and they…
![Mid-size shot of a woman with short, brown hair and a pink flower in her hair. She is wearing retro-style glasses and a neck brace and talks to a man which we can see from behind.](https://usercontent.one/wp/www.karina-sturm.com/wp-content/uploads/2019/04/Screen-Shot-2019-04-11-at-15.29.33-495x400.png)
Behind the Scenes: Meet the Filmmaker
We Are Visible is a documentary film about people all around the world living with Ehlers-Danlos syndrome (EDS).
Furthermore, it also involves a filmmaker that has EDS herself and therefore knows exactly what living with this invisible…
![Frontalaufnahme einer Frau mit braunen Haaren, die auf beiden Seiten zu einem Zopf gebunden sind. Sie trägt einen warmen Wintersweater.](https://usercontent.one/wp/www.karina-sturm.com/wp-content/uploads/2019/04/Bildschirmfoto-2019-01-20-um-17.25.36-495x400.png)
We Are Visible – Meet Jojo
We Are Visible is a feature-length documentary film about people all around the world living with Ehlers-Danlos syndrome. Today, I invite you to get a look at one of the incredible humans in this film: Jojo.
Jojo is a mom of five children.…