As someone living with a rare and chronic condition I feel strongly about raising awareness and helping others with similar health problems.

White letters on black background: You are faking it
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We Are Visible - Trailers

Many of the people who know me well would tell you that I am not a person that can do ”short.” I like to talk a lot, prefer to write long articles - the more words, the better, and love to involve more than one person in order to show a…
Karina is holding a sign saying: Yes, we care!

Yes, we care! - A campaign for children with rare diseases

The Care-for-Rare Foundation contacted me a few weeks ago and asked if I wanted to join their new campaign. Of course, I wanted to! And I would like to recommend this project to you. Why? Because the Care-for-Rare Foundation is committed to…