Posts

Speeches & Interviews
Speech at my film screening @ Chapman University
https://vimeo.com/385576868
Interviews
Podcast with Linda Bluestein and EDS Awareness
https://www.chronicpainpartners.com/webinar/we-are-visible-podcast/
Volunteer…

Guest blog posts and podcast interviews
Ehlers-Dan… What? Most people - and sometimes even medical professionals - do not know how to spell Ehlers-Danlos syndrome at all, let alone that they would know anything about the various symptoms that are associated with the rare illness.…

Interview with The Good Place actress Jameela Jamil
I recently had the pleasure of interviewing actress and advocate Jameela Jamil for ABILITY Magazine.
Jameela Jamil is an advocate for social justice, body neutrality, LGBTQ rights, and for a while now, she has also been using her public…

Watch ‘We Are Visible’ online ON DEMAND
My documentary film ‘We Are Visible,’ featuring people living with Ehlers-Danlos syndrome all across the globe, is now available ON DEMAND.
Unfortunately, due to COVID-19, most events and film screenings for ‘We Are Visible’…

Press about ’We Are Visible’
Interviews and Podcasts:
EDS Awareness Podcast with Dr. Linda Bluestein
I had the honor to be interviewed by Dr. Linda Bluestein, an EDS expert for a podcast featured by EDS Awareness. In this interview, we discuss the challenges of making…

We Are Visible – Film Awards, Competitions, and Festivals
'We Are Visible,' my first feature-length film about people living with Ehlers-Danlos syndrome all across the globe was accepted into smaller film competitions and awards. Look how well my documentary did.
Los Angeles Film Awards September…

What people say about ‘We Are Visible’
Writers, Journalists & Disability Advocates
Caitlin Hernandez
This engaging, poignant film captures the triumphs, trials, and truths experienced by several different people living with the same condition. Viewers will come to…

We Are Visible – Trailers
Many of the people who know me well would tell you that I am not a person that can do ”short.” I like to talk a lot, prefer to write long articles - the more words, the better, and love to involve more than one person in order to show a…

”Nothing about us without us!” – Producing ’We Are Visible’
My film We Are Visible, a feature-length documentary about people living with Ehlers-Danlos syndrome all around the globe, is in its final production phase, and it would be the time to release a trailer now.
However, putting together…

Ehlers-Danlos documentary: Meet the people involved
We Are Visible is a documentary film about people all around the world living with Ehlers-Danlos syndrome. Today, I invite you to meet the main contributors of my film.
Ashley & Sophia
Ashley
Ashley is a mom of two, and they…

Behind the Scenes: Meet the Filmmaker
We Are Visible is a documentary film about people all around the world living with Ehlers-Danlos syndrome (EDS).
Furthermore, it also involves a filmmaker that has EDS herself and therefore knows exactly what living with this invisible…

We Are Visible – Meet Jojo
We Are Visible is a feature-length documentary film about people all around the world living with Ehlers-Danlos syndrome. Today, I invite you to get a look at one of the incredible humans in this film: Jojo.
Jojo is a mom of five children.…