Karina Sturm
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About Me & My Work

You are here: Home / About Me & My Work
A woman with short, brown hair films two children at a school. The kids sit on a seating bag and listen to a book. The boy is 6 years old and wears a headset, the girl is 5 year old and has long blond hair.
Karina at work

About me

Code of Ethics

Curriculum Vitae

My Publications

Advocacy

Testimonials

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Welcome to my website!

Close-up of Karina Sturm's face. She is smiling, wears a neck brace and has a little flower clip in her short brown pixie cut hair. Her hair are blown around by the strong wind.

This is me, Karina – journalist, filmmaker, writer, and professional patient

I love the ocean, food (a lot) and, above all, writing, where I try to combine medical and scientific facts with human experiences. When I am not writing something, I am a professional patient, seeing my doctors concerning one of my chronic illnesses.

Popular
  • Side view of a woman with short, brown hair holding a camera with a big microphone in front of her face and filming out to the ocean.Frank MarxComing soon: Documentary film about the Ehlers-Danlos s...3. April 2019 - 0:46
  • White letters on black background: You are faking itWe Are Visible – Trailers26. July 2019 - 18:07
  • Old FilmPixabayScreening Events ’We Are Visible’ – Ehlers-Danlos...30. August 2019 - 2:22
  • Caitlin Hernandez, a young woman with brown, straight, shoulder-long hair and brown eyes smilesFirsts – Episode 2: Caitlin Hernandez2. October 2018 - 2:29
Recent
  • Winner Certificate: Festigious Winner, September 2019, International Film Festival, Los Angeles, Honorable Mention: Student Film (Feature), presented to: Karina Ulrike Sturm. We Are VisibleWe Are Visible – Film Awards, Competitions, and F...9. October 2019 - 0:31
  • Filmed from the end of a room. In front of the room is a large screen showing 'We Are Visible', Karina's film about Ehlers-Danlos syndrome.Jürgen GrunertWhat people say about ‘We Are Visible’22. September 2019 - 23:01
  • Frequently Asked Questions Button in orange, blue and purplePixabayFAQs – We Are Visible7. September 2019 - 21:43
  • Old FilmPixabayScreening Events ’We Are Visible’ – Ehlers-Danlos...30. August 2019 - 2:22
Comments
  • Hi Jason, I would love to help you set up a screening....17. November 2019 - 19:19 by karinabutterfly
  • Thank you so much, Rebecca! I know what you mean by "it's...17. November 2019 - 19:17 by karinabutterfly
  • Hi Jonathan, thanks so much for your kind words! I truly...17. November 2019 - 19:16 by karinabutterfly
  • I am a chronic pain patient (fibromyalgia) and advocate...10. November 2019 - 15:17 by Jason Herterich
Tags
AIDS Amputation Anxiety Athlete Autism Awareness Belo Cipriani Blindness California cannabis Chronic illness Chronic pain collaborative Crystallization Disability Disability Film Disabled Journalist Edinburgh Napier Ehlers-Danlos syndrome Genetic condition Germany Group project HIV hospital International Invisible illness Journalists Journos from the blog Laguna Honda Medical article medical marijuana Misdiagnosis Newsletter Opioids Outrigger skiing Paralympics Prosthesis PTSD Rare Disease Salmonella San Francisco/Bay Area Sports Stories of chronically ill Tenascin X USA

My websites

My German Blog

Cervical spine instability and Ehlers-Danlos syndrome

We Are Visible - Official Film Site

Watch ‘We Are Visible’

https://www.karina-sturm.com/wp-content/uploads/2019/11/Open-your-eyes-intro-website.m4v

Find me on social media

Visit Us On TwitterVisit Us On FacebookVisit Us On YoutubeVisit Us On LinkedinCheck Our FeedVisit Us On Instagram

Work I admire

Belo Cipriani - blind journalist

Cheryl Green’s film ‘Who Am I To Stop It’

Jarrod Sport - Media Professional

Haben Girma - Disability Rights Lawyer & Speaker

Disability Visibility Project

Disability Rights & Eduction Fund

EDS Awareness

Columbia Journalism Review

Beth Haller - Professor, media & disability scholar

Raul Krauthausen - activist for inclusion

The Mighty

Patientworthy

I fucking love science

Strength/Flexibility/Health/EDS

The Malleable Mom

Journos From The Blog

Joanna York - Journalist

Fat Brestovca - Presenter, Journalist, Filmmaker

Close-up face woman brown, short hair, big black glasses
The shackles that are my disease force me to keep looking down;
every day anew, I break these chains,
raise my head and make a step forward
 

– Karina Sturm – 
Journalist, Writer, Advocate
 

Chronic Illness & Disability 
 

Copyright - Karina Sturm - Enfold Theme by Kriesi
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