Karina Sturm
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About Me & My Work

You are here: Home / About Me & My Work
A woman with short, brown hair films two children at a school. The kids sit on a seating bag and listen to a book. The boy is 6 years old and wears a headset, the girl is 5 year old and has long blond hair.
Karina at work

About me

Code of Ethics

Curriculum Vitae

My Publications

Advocacy

Testimonials

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Welcome to my website!

Close-up of Karina Sturm's face. She is smiling, wears a neck brace and has a little flower clip in her short brown pixie cut hair. Her hair are blown around by the strong wind.

This is me, Karina – journalist, author, writer, and professional patient

I love the ocean, food (a lot) and, above all, writing, where I try to combine medical and scientific facts with human experiences. When I am not writing something, I am a professional patient, seeing my doctors concerning one of my chronic illnesses.

Popular
  • Side view of a woman with short, brown hair holding a camera with a big microphone in front of her face and filming out to the ocean.Frank MarxComing soon: Documentary film about the Ehlers-Danlos s...3. April 2019 - 0:46
  • Caitlin Hernandez, a young woman with brown, straight, shoulder-long hair and brown eyes smilesFirsts – Episode 2: Caitlin Hernandez2. October 2018 - 2:29
  • Sam E. Rubin ist ein junger Mann der vor einem Gemälde sitzt, die eine Katze zeigt. Er blickt nach unten und hat grüne Augen mit langen Wimpern. Sein Haar ist braun und wellig, sein Hemd kartiert.Firsts – Episode 3: Sam E. Rubin2. October 2018 - 2:30
  • David-Elijah Nahmod, ein Mann mit Brille und kurzen, welligen, braunen Haaren sitzt in einem Bürostuhl und trägt ein blaues Hemd.Firsts – Episode 1: David-Elijah Nahmod2. October 2018 - 2:28
Recent
  • A collage of 9 teenage and adult women and two children who are all contributors of the film We Are VisibleEhlers-Danlos documentary: Meet the people involved8. July 2019 - 20:01
  • Screenshot of the Columbia Journalism Review website. A picture of a laptop, pencil and paper, and der text: "Why disabled journalists should report on disability" can be seen.Why disabled journalists should report on disability –...19. April 2019 - 23:59
  • Mid-size shot of a woman with short, brown hair and a pink flower in her hair. She is wearing retro-style glasses and a neck brace and talks to a man which we can see from behind.Behind the Scenes: Meet the Filmmaker11. April 2019 - 0:49
  • Frontalaufnahme einer Frau mit braunen Haaren, die auf beiden Seiten zu einem Zopf gebunden sind. Sie trägt einen warmen Wintersweater.We Are Visible – Meet Jojo6. April 2019 - 22:07
Comments
  • Hi Megan, thank you so much for this encouraging comment....7. April 2019 - 19:44 by karinabutterfly
  • Thank you for doing this incredible project to bring more...7. April 2019 - 17:00 by Megan Perry
  • Hi Freya, thanks so much for your comment. In my family,...3. April 2019 - 22:15 by karinabutterfly
  • Hi Tina, thanks for your comment. To be honest, I have...3. April 2019 - 22:14 by karinabutterfly
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AIDS Amputation Anxiety Athlet Autism Awareness Belo Cipriani Blindness California cannabis Chronic illness Chronic pain collaborative Crystallization Disability Edinburgh Napier Ehlers-Danlos syndrome Genetic condition Germany Group project HIV hospital International Invisible illness Journalists Journos from the blog Laguna Honda Medical article medical marijuana Misdiagnosis Newsletter nursing home Opioids Outrigger skiing Paralympics Prosthesis PTSD Rare Disease Salmonella San Francisco/Bay Area skilled nursing care Sports Stories of chronically ill Tenascin X USA

My websites

My German Blog

Cervical spine instability and Ehlers-Danlos syndrome

Find me on social media

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Websites I love

The Mighty

Patientworthy

I fucking love science

Rare Daily

Strength/Flexibility/Health/EDS

RehaCare

NY Times Modern Love

The Malleable Mom

Journos From The Blog

Whater - Ordinary People. Extraordinary Stories.

Joanna York - Journalist

Fat Brestovca - Presenter, Journalist, Filmmaker

Close-up face woman brown, short hair, big black glasses
The shackles that are my disease force me to keep looking down;
every day anew, I break these chains,
raise my head and make a step forward
 

– Karina Sturm – 
Journalist, Writer, Advocate
 

Chronic Illness & Disability 
 

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