Karina Sturm
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About Me & My Work

You are here: Home1 / About Me & My Work
A woman with short, brown hair films two children at a school. The kids sit on a seating bag and listen to a book. The boy is 6 years old and wears a headset, the girl is 5 year old and has long blond hair.
Karina at work

About me

Code of Ethics

Curriculum Vitae

My Publications

Advocacy

Testimonials

Contact

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Welcome to my website!

Black and white photo of Karina, a woman with 7 mm shaved hair and huge round earrings.

Karina Sturm – journalist, filmmaker, writer, and professional patient

Karina is an award-winning filmmaker and journalist from Germany currently residing in the US. She gained significant scientific knowledge through studying laboratory technology and working in research for several years.

Due to a chronic illness and invisible disability, she found her passion for media production and has been working as a freelance journalist since 2013.

In 2019, she finished her Master’s degree by producing a feature-length documentary called ”We Are Visible” to highlight how to improve reporting on people with disabilities in media. ”We Are Visible” has won several movie awards, while Karina graduated with distinction from her journalism program.

Karina’s main focus is to represent people with illnesses and disabilities accurately in the media to reduce biases and stereotypes. She thinks disabled journalists should be reporting on disability. 

Popular
  • A screenshot of a zoom call with Ian Harding (left), a man with short brown hair and a full beard, and Karina Sturm (right), a woman with shaved brown hair and large, leaf-shaped earrings.In conversation with Ian Harding: actor, author, activi...7. December 2020 - 21:35
  • Side view of a woman with short, brown hair holding a camera with a big microphone in front of her face and filming out to the ocean.Frank MarxComing soon: Documentary film about the Ehlers-Danlos s...3. April 2019 - 0:46
  • White letters on black background: You are faking itWe Are Visible – Trailers26. July 2019 - 18:07
  • Old FilmPixabayScreening Events ’We Are Visible’ – Ehlers-Danlos...30. August 2019 - 2:22
  • Caitlin Hernandez, a young woman with brown, straight, shoulder-long hair and brown eyes smilesFirsts – Episode 2: Caitlin Hernandez2. October 2018 - 2:29
Recent
  • A screenshot of a zoom call with Ian Harding (left), a man with short brown hair and a full beard, and Karina Sturm (right), a woman with shaved brown hair and large, leaf-shaped earrings.In conversation with Ian Harding: actor, author, activi...7. December 2020 - 21:35
  • A black and white shot of Jameela, a woman with long black hair who rests her head on her handInterview with The Good Place actress Jameela Jamil20. May 2021 - 18:14
  • Black and white photo of Jade, a young girl with shoulder-long, blonde hair and a tube up her nose. She faces towards her left hand in which she holds part of her IVWatch ‘We Are Visible’ online ON DEMAND24. August 2020 - 22:08
  • Jacob Fraker, a young man with light brown, short hair and a beard is standing in a park and smiles.A Rare Disease Advisory Council and Ombudsperson for Ca...12. April 2020 - 23:20
Comments
  • Dear Zuly, Thanks so much for your kind words. I was planning...12. June 2020 - 19:07 by karinabutterfly
  • Hello Karina, I was diagnosed with Ehlers Danlos Syndrome...24. May 2020 - 9:24 by Zuly
  • Thanks for your interest in my film. You can find all the...5. April 2020 - 20:22 by karinabutterfly
  • Thanks for your interest in my film. Actually, you can find...5. April 2020 - 20:21 by karinabutterfly
Tags
ABILITY Magazine actor advocate Amputation Anxiety Athlete Autism Awareness Belo Cipriani Blindness California Chronic illness Chronic pain Crystallization Disability Disability Film Disabled Journalist Ehlers-Danlos syndrome film release Genetic condition Germany Ian Harding International Interviews Invisible illness Jacob Fraker Journalists Medical article medical marijuana Misdiagnosis Newsletter Ombudsperson Outrigger skiing Paralympics Politics PTSD Rare Disease Rare Disease Advisory Council Review Salmonella San Francisco/Bay Area Sports Stories of chronically ill Tenascin X USA

My websites

My German Blog

We Are Visible - Official Film Site

Watch WE ARE VISIBLE!

My documentary highlighting the challenges people with Ehlers-Danlos syndrome all across the globe face can be watched online now.

VIMEO ON DEMAND

Funny Bone News (EDS Newsletter) – In collaboration with EDS Awareness

Find me on social media

Visit Us On TwitterVisit Us On FacebookVisit Us On YoutubeVisit Us On LinkedinCheck Our FeedVisit Us On Instagram

Work I admire

Discomfort Zone - A Podcast about Chronic Pain

Ability Magazine

Belo Cipriani - blind journalist

Cheryl Green’s film ‘Who Am I To Stop It’

Jarrod Sport - Media Professional

Haben Girma - Disability Rights Lawyer & Speaker

Disability Visibility Project

Disability Rights & Eduction Fund

EDS Awareness

Columbia Journalism Review

Beth Haller - Professor, media & disability scholar

Raul Krauthausen - activist for inclusion

The Mighty

Patientworthy

I fucking love science

Strength/Flexibility/Health/EDS

The Malleable Mom

Journos From The Blog

Joanna York - Journalist

Fat Brestovca - Presenter, Journalist, Filmmaker

Documentary Series ‘Trust me, I am sick’

A portrait shot of Karina, a woman with short, 10 mm shaved, brown hair and huge, feather-like earrings sits in her kitchen.

The shackles that are my disease force me to keep looking down;
every day anew, I break these chains,
raise my head and make a step forward
 

– Karina Sturm – 
Journalist, Writer, Advocate
 

Chronic Illness & Disability 
 

Copyright - Karina Sturm - Enfold Theme by Kriesi
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