Karina Sturm
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About Me & My Work

You are here: Home / About Me & My Work
A woman with short, brown hair films two children at a school. The kids sit on a seating bag and listen to a book. The boy is 6 years old and wears a headset, the girl is 5 year old and has long blond hair.
Karina at work

About me

Code of Ethics

Curriculum Vitae

My Publications

Advocacy

Testimonials

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Welcome to my website!

Close-up of Karina Sturm's face. She is smiling, wears a neck brace and has a little flower clip in her short brown pixie cut hair. Her hair are blown around by the strong wind.

This is me, Karina – journalist, author, writer, and professional patient

I love the ocean, food (a lot) and, above all, writing, where I try to combine medical and scientific facts with human experiences. When I am not writing something, I am a professional patient, seeing my doctors concerning one of my chronic illnesses.

Popular
  • White letters on black background: You are faking itWe Are Visible – Trailers26. July 2019 - 18:07
  • Side view of a woman with short, brown hair holding a camera with a big microphone in front of her face and filming out to the ocean.Frank MarxComing soon: Documentary film about the Ehlers-Danlos s...3. April 2019 - 0:46
  • Sam E. Rubin ist ein junger Mann der vor einem Gemälde sitzt, die eine Katze zeigt. Er blickt nach unten und hat grüne Augen mit langen Wimpern. Sein Haar ist braun und wellig, sein Hemd kartiert.Firsts – Episode 3: Sam E. Rubin2. October 2018 - 2:30
  • Caitlin Hernandez, a young woman with brown, straight, shoulder-long hair and brown eyes smilesFirsts – Episode 2: Caitlin Hernandez2. October 2018 - 2:29
  • Mid-size shot of a woman with short, brown hair and a pink flower in her hair. She is wearing retro-style glasses and a neck brace and talks to a man which we can see from behind.Behind the Scenes: Meet the Filmmaker11. April 2019 - 0:49
Recent
  • White letters on black background: You are faking itWe Are Visible – Trailers26. July 2019 - 18:07
  • Frequently Asked Questions Button in orange, blue and purplePixabayFAQs – We Are Visible7. September 2019 - 21:43
  • Old FilmPixabayScreening Events ’We Are Visible’ – Ehlers-Danlos...30. August 2019 - 2:22
  • Karina, a woman with short, brown hair looks into the nothingness. She sits on stairs in the nature and is seen in profile. She wears four earrings. One of those is a dolphin, and the other one a turtle. Additionally, she wears a white-blue scarf around her neck brace.Karina Sturm ”Nothing about us without us!” – Producing ’We...24. July 2019 - 18:09
Comments
  • Hi Michelle, I am so sorry your son's teachers don't understand....21. August 2019 - 22:26 by karinabutterfly
  • My 11 year old son has EDS, he has a 504 for school but...16. August 2019 - 0:12 by Michelle Van Keulen
  • Hi Jen, thanks so much for your kind words. I am so...26. July 2019 - 18:06 by karinabutterfly
  • Thank You for doing this doc. I am a 48 year old living...25. July 2019 - 0:17 by Jen Struk
Tags
AIDS Amputation Anxiety Athlet Autism Awareness Belo Cipriani Blindness California cannabis Chronic illness Chronic pain collaborative Crystallization Disability Edinburgh Napier Ehlers-Danlos syndrome Genetic condition Germany Group project HIV hospital International Invisible illness Journalists Journos from the blog Laguna Honda Medical article medical marijuana Misdiagnosis Newsletter nursing home Opioids Outrigger skiing Paralympics Prosthesis PTSD Rare Disease Salmonella San Francisco/Bay Area skilled nursing care Sports Stories of chronically ill Tenascin X USA

My websites

My German Blog

Cervical spine instability and Ehlers-Danlos syndrome

Find me on social media

Visit Us On TwitterVisit Us On FacebookVisit Us On YoutubeVisit Us On LinkedinCheck Our FeedVisit Us On Instagram

Work I admire

Belo Cipriani - blind journalist

Cheryl Green’s film ‘Who Am I To Stop It’

Jarrod Sport - Media Professional

Haben Girma - Disability Rights Lawyer & Speaker

Disability Visibility Project

Disability Rights & Eduction Fund

EDS Awareness

Columbia Journalism Review

Beth Haller - Professor, media & disability scholar

Raul Krauthausen - activist for inclusion

The Mighty

Patientworthy

I fucking love science

Strength/Flexibility/Health/EDS

The Malleable Mom

Journos From The Blog

Joanna York - Journalist

Fat Brestovca - Presenter, Journalist, Filmmaker

Close-up face woman brown, short hair, big black glasses
The shackles that are my disease force me to keep looking down;
every day anew, I break these chains,
raise my head and make a step forward
 

– Karina Sturm – 
Journalist, Writer, Advocate
 

Chronic Illness & Disability 
 

Copyright - Karina Sturm - Enfold Theme by Kriesi
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