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FAQs - We Are Visible

What can I expect of ’We Are Visible’? ’We Are Visible’ is a student film and part of my journalism degree's MA thesis. I am also disabled and live with Ehlers-Danlos syndrome and related conditions myself. As part of my program,…
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Screening Events ’We Are Visible’ - Ehlers-Danlos Documentary

I am inviting the Ehlers-Danlos community to join me for several screenings of my feature-length film ’We Are Visible,’ which shows a variety of people living with Ehlers-Danlos syndrome and related conditions all around the globe.  We…
White letters on black background: You are faking it
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We Are Visible - Trailers

Many of the people who know me well would tell you that I am not a person that can do ”short.” I like to talk a lot, prefer to write long articles - the more words, the better, and love to involve more than one person in order to show a…
Karina, a woman with short, brown hair looks into the nothingness. She sits on stairs in the nature and is seen in profile. She wears four earrings. One of those is a dolphin, and the other one a turtle. Additionally, she wears a white-blue scarf around her neck brace.Karina Sturm
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”Nothing about us without us!” - Producing ’We Are Visible’

My film We Are Visible, a feature-length documentary about people living with Ehlers-Danlos syndrome all around the globe, is in its final production phase, and it would be the time to release a trailer now.   However, putting together…
A collage of 9 teenage and adult women and two children who are all contributors of the film We Are Visible
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Ehlers-Danlos documentary: Meet the people involved

We Are Visible is a documentary film about people all around the world living with Ehlers-Danlos syndrome. Today, I invite you to meet the main contributors of my film. Ashley & Sophia  Ashley Ashley is a mom of two, and they…
Mid-size shot of a woman with short, brown hair and a pink flower in her hair. She is wearing retro-style glasses and a neck brace and talks to a man which we can see from behind.
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Behind the Scenes: Meet the Filmmaker

We Are Visible is a documentary film about people all around the world living with Ehlers-Danlos syndrome (EDS).  Furthermore, it also involves a filmmaker that has EDS herself and therefore knows exactly what living with this invisible…
Frontalaufnahme einer Frau mit braunen Haaren, die auf beiden Seiten zu einem Zopf gebunden sind. Sie trägt einen warmen Wintersweater.
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We Are Visible - Meet Jojo

We Are Visible is a feature-length documentary film about people all around the world living with Ehlers-Danlos syndrome. Today, I invite you to get a look at one of the incredible humans in this film: Jojo. Jojo is a mom of five children.…
Side view of a woman with short, brown hair holding a camera with a big microphone in front of her face and filming out to the ocean.Frank Marx
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Coming soon: Documentary film about the Ehlers-Danlos syndromes

The Ehlers-Danlos syndromes are a group of rare connective tissue disorders that can affect every part of the body. We Are Visible wants to show the full picture of the condition including the complex presentation of symptoms, to the complications…
Screenshot of an article called "23 Consequences Of Misdiagnosis People With EDS Had to Deal With"
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Call-out articles for The Mighty

The following are my pieces based on what the community shared with The Mighty. Many people living with Ehlers-Danlos syndrome need to apply for disability benefits at some point of their journey. This is what they wished the people who decide…
Denise sits in her wheelchair on a beach. She is waring ankle, knee and wrist braces. Also she wears white pants, a blue shirt and red lipstick. Her hair are red and short. In the background is the ocean and some green grass.
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30 doctors have been wrong for 12 years: The medical odyssey of Denise B.

Denise lived with excruciating pain. Her skin was covered in hematomas and no doctor could help her. It was twelve years later, when the surprising diagnosis was revealed, and it came close to salvation. Early in Denise’s life doctors…
A bottle of Care by Design medical cannabis on a table
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Medical marijuana - a medication in CA, and a drug in Germany

Germany and the US have many apparent differences. However, the gap couldn’t be larger in terms of people discussing marijuana, especially for medical use. Uncountable patients that suffer from chronic pain live in Germany, and many of them…
Close-up of green marijuana plant

Living with medical marijuana as a German in California

What happens if you move from Germany to San Francisco without proper pain medication? You try cannabis for the first time! If you want to read this article, it is available at: Journos From The Blog Interested in learning more about medical…