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A screenshot of a zoom call with Ian Harding (left), a man with short brown hair and a full beard, and Karina Sturm (right), a woman with shaved brown hair and large, leaf-shaped earrings.
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In conversation with Ian Harding: actor, author, activist

In my role as journalist for ABILITY Magazine and as advocate for the Ehlers-Danlos community, the German organization Chronisch Cool contacted me and connected me to Ian Harding, better known as Ezra Fitz in Pretty Little Liars. Ian is…
Frequently Asked Questions Button in orange, blue and purplePixabay
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FAQs – We Are Visible

What can I expect of ’We Are Visible’? ’We Are Visible’ is a student film and part of my journalism degree's MA thesis. I am also disabled and live with Ehlers-Danlos syndrome and related conditions myself. As part of my program,…
Old FilmPixabay
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Screening Events ’We Are Visible’ – Ehlers-Danlos Documentary

I am inviting the Ehlers-Danlos community to join me for several screenings of my feature-length film ’We Are Visible,’ which shows a variety of people living with Ehlers-Danlos syndrome and related conditions all around the globe.  We…
White letters on black background: You are faking it
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We Are Visible – Trailers

Many of the people who know me well would tell you that I am not a person that can do ”short.” I like to talk a lot, prefer to write long articles - the more words, the better, and love to involve more than one person in order to show a…
Karina, a woman with short, brown hair looks into the nothingness. She sits on stairs in the nature and is seen in profile. She wears four earrings. One of those is a dolphin, and the other one a turtle. Additionally, she wears a white-blue scarf around her neck brace.Karina Sturm
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”Nothing about us without us!” – Producing ’We Are Visible’

My film We Are Visible, a feature-length documentary about people living with Ehlers-Danlos syndrome all around the globe, is in its final production phase, and it would be the time to release a trailer now.   However, putting together…
A collage of 9 teenage and adult women and two children who are all contributors of the film We Are Visible
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Ehlers-Danlos documentary: Meet the people involved

We Are Visible is a documentary film about people all around the world living with Ehlers-Danlos syndrome. Today, I invite you to meet the main contributors of my film. Ashley & Sophia  Ashley Ashley is a mom of two, and they…
Mid-size shot of a woman with short, brown hair and a pink flower in her hair. She is wearing retro-style glasses and a neck brace and talks to a man which we can see from behind.
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Behind the Scenes: Meet the Filmmaker

We Are Visible is a documentary film about people all around the world living with Ehlers-Danlos syndrome (EDS).  Furthermore, it also involves a filmmaker that has EDS herself and therefore knows exactly what living with this invisible…
Frontalaufnahme einer Frau mit braunen Haaren, die auf beiden Seiten zu einem Zopf gebunden sind. Sie trägt einen warmen Wintersweater.
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We Are Visible – Meet Jojo

We Are Visible is a feature-length documentary film about people all around the world living with Ehlers-Danlos syndrome. Today, I invite you to get a look at one of the incredible humans in this film: Jojo. Jojo is a mom of five children.…
Side view of a woman with short, brown hair holding a camera with a big microphone in front of her face and filming out to the ocean.Frank Marx
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Coming soon: Documentary film about the Ehlers-Danlos syndromes

The Ehlers-Danlos syndromes are a group of rare connective tissue disorders that can affect every part of the body. We Are Visible wants to show the full picture of the condition including the complex presentation of symptoms, to the complications…
Logo: Journos From The Blog
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Collaborative Work: Journos From The Blog

In 2018, I started to study "international journalism" at Edinburgh Napier University in Scotland. For my first assignment in the cross-platform module, I was part of a group project with five other students from all around the world.  Let…