Posts

In conversation with Ian Harding: actor, author, activist
In my role as journalist for ABILITY Magazine and as advocate for the Ehlers-Danlos community, the German organization Chronisch Cool contacted me and connected me to Ian Harding, better known as Ezra Fitz in Pretty Little Liars. Ian is…

FAQs – We Are Visible
What can I expect of ’We Are Visible’?
’We Are Visible’ is a student film and part of my journalism degree's MA thesis. I am also disabled and live with Ehlers-Danlos syndrome and related conditions myself.
As part of my program,…

Screening Events ’We Are Visible’ – Ehlers-Danlos Documentary
I am inviting the Ehlers-Danlos community to join me for several screenings of my feature-length film ’We Are Visible,’ which shows a variety of people living with Ehlers-Danlos syndrome and related conditions all around the globe.
We…

We Are Visible – Trailers
Many of the people who know me well would tell you that I am not a person that can do ”short.” I like to talk a lot, prefer to write long articles - the more words, the better, and love to involve more than one person in order to show a…

”Nothing about us without us!” – Producing ’We Are Visible’
My film We Are Visible, a feature-length documentary about people living with Ehlers-Danlos syndrome all around the globe, is in its final production phase, and it would be the time to release a trailer now.
However, putting together…

Ehlers-Danlos documentary: Meet the people involved
We Are Visible is a documentary film about people all around the world living with Ehlers-Danlos syndrome. Today, I invite you to meet the main contributors of my film.
Ashley & Sophia
Ashley
Ashley is a mom of two, and they…

Behind the Scenes: Meet the Filmmaker
We Are Visible is a documentary film about people all around the world living with Ehlers-Danlos syndrome (EDS).
Furthermore, it also involves a filmmaker that has EDS herself and therefore knows exactly what living with this invisible…

We Are Visible – Meet Jojo
We Are Visible is a feature-length documentary film about people all around the world living with Ehlers-Danlos syndrome. Today, I invite you to get a look at one of the incredible humans in this film: Jojo.
Jojo is a mom of five children.…

Coming soon: Documentary film about the Ehlers-Danlos syndromes
The Ehlers-Danlos syndromes are a group of rare connective tissue disorders that can affect every part of the body.
We Are Visible wants to show the full picture of the condition including the complex presentation of symptoms, to the complications…

Collaborative Work: Journos From The Blog
In 2018, I started to study "international journalism" at Edinburgh Napier University in Scotland. For my first assignment in the cross-platform module, I was part of a group project with five other students from all around the world.
Let…