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74

Privacy Policy

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Responsible person for privacy policy:  Karina Sturm 1321 Upland Dr. PMB 17561 Houston, TX 77043 US Privacy Policy  Here we would like to inform you of our Privacy Policy. In the following passage, you can find information about the collection and usage of personal information when you use our website. This website consents with all requirements […]

75

Guides

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As editor-in-chief for Chronic Pain Partners’ newsletter, I have been putting together guides to help people with EDS navigate the diagnostic process as well as the management of EDS and some of its comorbid conditions. Stay tuned for more guides!  Cervical Spine Instability Patient Guide Dysautonomia Patient Guide Mast Cell Activation Syndrome Guide

76

Newsletter

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In collaboration with John Ferman, CEO of the non-profit organization EDS Awareness, I am curating a new EDS newsletter called Chronic Pain Partners Post. We plan for this newsletter to be a place for everyone to share their work on EDS. It’s a community project with useful resources, science updates, events, content from advocates all across the globe […]

77

Resources

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Basic English Resources EDS Awareness/Chronic Pain Partners Webinars on absolutely any EDS-related topic by all experts but also original content written by and for the community under my lead as editor-in-chief. https://www.chronicpainpartners.com Ehlers-Danlos Society Conference presentations as slides and videos by renown EDS experts: Past Conferences  The latest classification, management guidelines and recent knowledge about […]

78

Publications

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English only 2023 Mitch Martow on his EDS journey and the documentary Bend or Break – Chronic Pain Partners Author Jessica MacLean on how writing saved her and what she learned from her ancestors – Chronic Pain Partners Chronic Pain Partners Newsletter January 2023 Advocate Nthabeleng Ramoeli on her EDS journey, EDS care in Lesotho, […]

80

Imprint

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Based on German laws, this website has to have the following statements. Karina Sturm Responsible for the content (§ 55 Abs. 2 RStV): Karina Sturm 1321 Upland Dr. PMB 17561 Houston, TX 77043 US Disclaimer – Legal Notices § 1 Limitation of Liability The content of this website is created with utmost care. The provider […]