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Denise lived with excruciating pain. Her skin was covered in hematomas and no doctor could help her. It was twelve years later, when the surprising diagnosis was revealed, and it came close to salvation. Early in Denise’s life doctors noticed that something was wrong with her. As a baby, she had to be fed through […]
While working in research, I published these two scientific articles: STURM, Karina U., et al. Crystallization and preliminary crystallographic analysis of an Ig-domain-encompassing fragment of the giant adhesion protein SiiE from Salmonella enterica. Acta Crystallographica Section F: Structural Biology and Crystallization Communications, 2011, 67. Jg., Nr. 11, S. 1371-1374. GRIESSL, Martin H., et al. Structural […]
Whenever I need stories that do not portray people living with chronic conditions as ‘patients’ or ‘sufferers,’ but as people that face their illness with courage, strength, and hope, I give Karina a call and reserve the front page. Raoul Mazhar – Editor-in-chief Austrian Ärzte Woche Education September 2002 – June 2006 Three year standardized education […]
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As editor-in-chief for Chronic Pain Partners’ newsletter, I have been putting together guides to help people with EDS navigate the diagnostic process as well as the management of EDS and some of its comorbid conditions. Stay tuned for more guides! Cervical Spine Instability Patient Guide Dysautonomia Patient Guide Mast Cell Activation Syndrome Guide
In collaboration with John Ferman, CEO of the non-profit organization EDS Awareness, I am curating a new EDS newsletter called Chronic Pain Partners Post. We plan for this newsletter to be a place for everyone to share their work on EDS. It’s a community project with useful resources, science updates, events, content from advocates all across the globe […]
Basic English Resources EDS Awareness/Chronic Pain Partners Webinars on absolutely any EDS-related topic by all experts but also original content written by and for the community under my lead as editor-in-chief. https://www.chronicpainpartners.com Ehlers-Danlos Society Conference presentations as slides and videos by renown EDS experts: Past Conferences The latest classification, management guidelines and recent knowledge about […]
English only 2024 EDS Awareness Newsletter February 2024 – Chronic Pain Partners EDS Awareness Newsletter May 2024 – Chronic Pain Partners Complicated – the must-watch documentary on Ehlers-Danlos Syndrome Filmmaker Andrew Abrahams on the New EDS Documentary ‘Complicated’ 2023 Mitch Martow on his EDS journey and the documentary Bend or Break – Chronic Pain Partners […]
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Based on German laws, this website has to have the following statements. Karina Sturm Responsible for the content (§ 55 Abs. 2 RStV): Karina Sturm 1321 Upland Dr. PMB 17561 Houston, TX 77043 US Disclaimer – Legal Notices § 1 Limitation of Liability The content of this website is created with utmost care. The provider […]
