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Interviews and Podcasts: EDS Awareness Podcast with Dr. Linda Bluestein I had the honor to be interviewed by Dr. Linda Bluestein, an EDS expert for a podcast featured by EDS Awareness. In this interview, we discuss the challenges of making ’We Are Visible’, my personal goals for the next years, and the plan for future […]
‘We Are Visible,’ my first feature-length film about people living with Ehlers-Danlos syndrome all across the globe was accepted into smaller film competitions and awards. Look how well my documentary did. Los Angeles Film Awards September 2019 We Are Visible made it into the official selection of the LA Film Awards and was then chosen […]
Writers, Journalists & Disability Advocates This engaging, poignant film captures the triumphs, trials, and truths experienced by several different people living with the same condition. Viewers will come to care about each character and deeply understand the ways in which illness, the public’s ignorance and prejudice, and both internal and external struggles impact those living […]
Many of the people who know me well would tell you that I am not a person that can do ”short.” I like to talk a lot, prefer to write long articles – the more words, the better, and love to involve more than one person in order to show a variety of perspectives. These […]
My film We Are Visible, a feature-length documentary about people living with Ehlers-Danlos syndrome all around the globe, is in its final production phase, and it would be the time to release a trailer now. However, putting together a trailer turned out to be quite a challenge for me. I kept asking myself: How […]
We Are Visible is a documentary film about people all around the world living with Ehlers-Danlos syndrome. Today, I invite you to meet the main contributors of my film. Ashley & Sophia Ashley is a mom of two, and they all have Ehlers-Danlos syndrome. In her Blog she talks about living with Ehlers-Danlos syndrome as […]
“Disability reporting needs to improve, and the solution is simple: we need more journalists with disabilities in newsrooms.”
We Are Visible is a documentary film about people all around the world living with Ehlers-Danlos syndrome (EDS). Furthermore, it also involves a filmmaker that has EDS herself and therefore knows exactly what living with this invisible condition feels like. My journey with chronic illness started in 2010 when I was 24 years old. I […]
We Are Visible is a feature-length documentary film about people all around the world living with Ehlers-Danlos syndrome. Today, I invite you to get a look at one of the incredible humans in this film: Jojo. Jojo is a mom of five children. She and four of her children have EDS. When she shared a […]
The Ehlers-Danlos syndromes are a group of rare connective tissue disorders that can affect every part of the body. We Are Visible wants to show the full picture of the condition including the complex presentation of symptoms, to the complications while searching for a diagnosis, over misdiagnoses and their harmful consequences, but also the daily […]
Have you ever wondered if you are the only one who has been misdiagnosed by a medical professional in the past? In fact, you are in good company. Diagnostic errors are a global threat, but rarely do we hear about them. For this article, I interviewed several people who were affected by misdiagnoses and tried […]
