Posts
![An image of a woman rubbing her neck with her hands. She has long brown hair and closed eyes. Red text on green background: Book Review. Chronic pain is a bitch! Don't let it turn you into one.](https://usercontent.one/wp/www.karina-sturm.com/wp-content/uploads/2022/10/Cover-Image-495x400.png)
Book Review: Holding It All Together When You’re Hypermobile
For our Chronic Pain Partners Post edition of November 2022, I reviewed author and fellow zebra Christie Cox's new EDS book called Holding It All Together When You're Hypermobile. In this article, we will provide more information on the book's…
![Sarah, a woman with long blonde hair sits on her bed with a big box of medication in front of her.](https://usercontent.one/wp/www.karina-sturm.com/wp-content/uploads/2022/10/Cover-Image-495x400.jpg)
We Are Visible Too! Episode 1: Sarah Rightmire
We Are Visible (Too) is an ongoing mini-film series portraying people with EDS all across the globe. In this mini-documentary series, I will continue on the We Are Visible - a feature-length film about people with EDS - journey and add a…
![Two people in a physical therapy office standing next to each other. A woman with short brown hair and a white shirt and pink skirt smiles brightly. Next to her stands a man with a blue shirt and a stethoscope around his neck who also smiles brightly.](https://usercontent.one/wp/www.karina-sturm.com/wp-content/uploads/2022/11/Image-10-PT-Dr.-Michael-Healy-with-journalist-Karina-Sturm-495x400.jpeg)
Where physical therapy ends and magic begins: Healy Physical Therapy and Sports Medicine
“He helped my daughter get from being bedridden to going back to college,” says Michele Pestana when I meet her at Healy Physical Therapy and Sports Medicine in Providence, Rhode Island, on a hot summer day in July 2022. Pestana is…
![A woman with long brown hair hanging over her left shoulder sits on a chair with her right arm under her chin. She wears a brown sweater and sits in a bright white room.](https://usercontent.one/wp/www.karina-sturm.com/wp-content/uploads/2022/07/Image-3-1-495x400.jpeg)
Meghan O’Rourke and The Invisible Kingdom
As part of our monthly Chronic Pain Partners Post Newsletter, I had the pleasure of speaking with Megan O’Rourke, a fellow Zebra, but more importantly, journalist and author who recently published the bestselling book “The Invisible…
![A photo of Dr. Chopra, a man with short brown hair and glasses. Next to him is an image of Karina, a woman with short brown hair and leaf-shaped dangling earrings. Next to her is the EDS Awareness Logo with text: Interview, Dr. Chopra & Karina Sturm, Psychological aspects of EDS - Dr. Chopra’s Statement explained.](https://usercontent.one/wp/www.karina-sturm.com/wp-content/uploads/2022/06/Untitled.001-495x400.jpeg)
Interview with Dr. Pradeep Chopra regarding the psychological and psychiatric aspects of the Ehlers-Danlos syndromes and hypermobility spectrum disorders
Introduction
EDS expert and pain specialist Dr. Pradeep Chopra contacted Chronic Pain Partners to speak about a recently published review on the psychological and psychiatric aspects of Ehlers-Danlos syndrome. Dr. Chopra has been…
![A person with rainbow colored hair that are shaved on the sides. The person wears a black tank top and holds a fluffy white dog.](https://usercontent.one/wp/www.karina-sturm.com/wp-content/uploads/2022/07/Machias-Author-Photo-495x400.jpg)
Jules Machias about their EDS journey and new middle-grade book Fight + Flight
For our Chronic Pain Partner Post newsletter, the Chronic Pain Partner media team is excited to introduce the EDS community to the new middle-grade* fiction book “Fight + Flight,” which features a character with EDS! I had the…
![A woman with long brown hair bound to a ponytail sits in her garden on a chair with giraffe pattern. She smiles, wears a black shirt and sunglasses on top of her head.](https://usercontent.one/wp/www.karina-sturm.com/wp-content/uploads/2022/07/Donna-sullivan-interview_3-1-495x400.jpeg)
Interview with EDS advocate Donna Sullivan, TCAPP, about wrongful child abuse allegations and medically complex children
For our Chronic Pain Partners Post newsletter, I spoke with Donna Sullivan, board member of The Coalition Against Pediatric Pain (TCAPP). Sullivan lives with EDS and has several affected children as well. In this interview, she shares…
![A comic-like illustration of a Zebra with a golden microphone in front and text: EDS & Aging, New Project](https://usercontent.one/wp/www.karina-sturm.com/wp-content/uploads/2022/03/EDS-Aging-Project-495x400.png)
EDS & Aging
The EDS & Aging Project
Funny Bone Newsletter - March 2022
presented by EDS Awareness
This is a community-centered project with people older than 45 who want to share their experiences about aging as a person with EDS.…
![A woman with shoulder-long blonde hair sits on a blue exercise mat. She wears black pants and a black tank top and lifts her left arm up to her side. Text: The Zebra Club.](https://usercontent.one/wp/www.karina-sturm.com/wp-content/uploads/2022/01/Screen-Shot-2022-01-15-at-12.05.35-PM-495x400.png)
Jeannie Di Bon’s Zebra Club App – A Review
“Wow,” was the first word that came to my mind when I started to exercise with Jeannie Di Bon’s new program: The Zebra Club. My feelings regarding Jeannie’s new app were very similar to when I read Diana Jovin’s book Disjointed, which…
![Two Zebras](https://usercontent.one/wp/www.karina-sturm.com/wp-content/uploads/2018/03/2-Ehlers-Danlos-Zebra--e1551208990977-495x400.jpg)
Speeches & Interviews
Speech at my film screening @ Chapman University
https://vimeo.com/385576868
Interviews
Podcast with Linda Bluestein and EDS Awareness
https://www.chronicpainpartners.com/webinar/we-are-visible-podcast/
Volunteer…
![Three red gift boxes. Text: Gift Ideas](https://usercontent.one/wp/www.karina-sturm.com/wp-content/uploads/2021/12/ideas-495x400.jpg)
Gift ideas for chronically ill people
The holidays are around the corner, and soon, we all will be ordering presents for our healthy or chronically ill friends and family. I don’t know how you feel about this, but I always have a hard time finding the right gift. Luckily, there…
![Karina, a woman with short brown hair leans against a wall on a balcony during sunset. She wears a white hoodie and holds a glass of wine in her hand. In the background you can see an old church and many older houses.](https://usercontent.one/wp/www.karina-sturm.com/wp-content/uploads/2021/12/IMG_7395-495x400.jpg)
Cheers, to a new New Year’s Eve tradition: Gratitude
Can you believe that the year is almost over? Again? I feel like since the pandemic started, time has flown but also stood still at the same time. Unlike 2020 - we can all agree that 2020 should just be canceled entirely, right? - I have mixed…