Posts

Karina is holding a sign saying: Yes, we care!

Yes, we care! – A campaign for children with rare diseases

The Care-for-Rare Foundation contacted me a few weeks ago and asked if I wanted to join their new campaign. Of course, I wanted to! And I would like to recommend this project to you. Why? Because the Care-for-Rare Foundation is committed to…
Old Building of the Laguna Honda Hospital in San Francisco with a statue in the foreground.
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Positive Care – a short documentary

Positive Care is a short documentary about the lives of previous and current residents at Laguna Honda's Positive Care Unit in San Francisco.  https://www.youtube.com/watch?v=nTEYPmyXH5g&frags=pl%2Cwn
Butterfly which is a lateral cut through the spinal cord as well. It is striped like a zebra.

German Podcast

In my German podcast Aches, Pains & Smiles, I talk to people with various disabilities and chronic illnesses about everything that matters to us.
Denise sits in her wheelchair on a beach. She is waring ankle, knee and wrist braces. Also she wears white pants, a blue shirt and red lipstick. Her hair are red and short. In the background is the ocean and some green grass.
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30 doctors have been wrong for 12 years: The medical odyssey of Denise B.

Denise lived with excruciating pain. Her skin was covered in hematomas and no doctor could help her. It was twelve years later, when the surprising diagnosis was revealed, and it came close to salvation. Early in Denise’s life doctors…
Close-up of green marijuana plant

Living with medical marijuana as a German in California

What happens if you move from Germany to San Francisco without proper pain medication? You try cannabis for the first time! If you want to read this article, it is available at: Journos From The Blog Interested in learning more about medical…
This picture shows a simplified illustration of the RCCX gene locus which includes Tenascin XB
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Medical article about the gene Tenascin-XB

In this medical article, I describe the association between the Tenascin-XB gene and specific Ehlers-Danlos syndrome types based on current research. I, therefore, read more than 40 scientific publications and referenced many in this article…