Posts

In conversation with Ian Harding: actor, author, activist
In my role as journalist for ABILITY Magazine and as advocate for the Ehlers-Danlos community, the German organization Chronisch Cool contacted me and connected me to Ian Harding, better known as Ezra Fitz in Pretty Little Liars. Ian is…

Positive Care – a short documentary
Positive Care is a short documentary about the lives of previous and current residents at Laguna Honda's Positive Care Unit in San Francisco.
https://www.youtube.com/watch?v=nTEYPmyXH5g&frags=pl%2Cwn

German Podcast
My German podcast contains interviews with people living with disabilities and chronic illnesses, as well as with medical professionals.
If you speak German, check out the ”5-questions-for” interview series:
https://www.holy-shit-i-am-…

30 doctors have been wrong for 12 years: The medical odyssey of Denise B.
Denise lived with excruciating pain. Her skin was covered in hematomas and no doctor could help her. It was twelve years later, when the surprising diagnosis was revealed, and it came close to salvation.
Early in Denise’s life doctors…

Pain medication, legalized marijuana and chronic illness
I spoke to Monica who lives with a rare and painful illness called Ehlers-Danlos syndrome. Find out how she copes with the daily problems, what medication she takes, and what it means to her to live in CA where marijuana is now completely legal.
Bild:…

Medical marijuana – a medication in CA, and a drug in Germany
Germany and the US have many apparent differences. However, the gap couldn’t be larger in terms of people discussing marijuana, especially for medical use. Uncountable patients that suffer from chronic pain live in Germany, and many of them…

Living with medical marijuana as a German in California
What happens if you move from Germany to San Francisco without proper pain medication? You try cannabis for the first time!
If you want to read this article, it is available at:
Journos From The Blog
Interested in learning more about medical…

“Why can’t I just stay in bed?” – Seeing life through the eyes of a chronically ill child
Seeing the world through the eyes of a child helps some grown-ups to change their attitude towards life, but what happens if this child lives with a severe chronic illness and endures obstacles many adults never have to bear. Marlon* is eight…

My struggle to feel deserving of love as a woman with chronic illness
Living with a chronic illness inspired me to write about other people that share my fate. However, I also publish very personal essays about my life with chronic illness. Read on The Mighty why I struggled to feel deserving of love:
My struggle…

Medical article about the gene Tenascin-XB
In this medical article, I describe the association between the Tenascin-XB gene and specific Ehlers-Danlos syndrome types based on current research. I, therefore, read more than 40 scientific publications and referenced many in this article…