Posts

In conversation with Ian Harding: actor, author, activist
In my role as journalist for ABILITY Magazine and as advocate for the Ehlers-Danlos community, the German organization Chronisch Cool contacted me and connected me to Ian Harding, better known as Ezra Fitz in Pretty Little Liars. Ian is…

A Rare Disease Advisory Council and Ombudsperson for California!
A few weeks ago, I met Jacob Fraker, a legislative aid of Assemblymember Susan Eggman at the California State Capitol. More importantly, Jacob is part of the rare disease community as well. He has been living with the rare genetic condition…

Impressions: We Are Visible at Chapman University in Orange, CA
We Are Visible Filmscreening at Chapman University in Orange, CAProf. Beth Haller & Filmmaker Karina Sturm
I had the great honor to present my film followed by a short Q&A at Chapman University in Orange, CA. Organized by social…

Newsletter for The Mighty
Part of my work for The Mighty included creating the weekly Ehlers-Danlos syndrome newsletter. Here are some examples:
EDS Newsletter September 20
EDS Newsletter September 27
Epilepsy Newsletter October 2
EDS Newsletter October…

Call-out articles for The Mighty
The following are my pieces based on what the community shared with The Mighty.
Many people living with Ehlers-Danlos syndrome need to apply for disability benefits at some point of their journey. This is what they wished the people who decide…

Internship at The Mighty
During September 2018, I had the great pleasure to work as a temporary staff member for The Mighty, the largest online magazine for people living with chronic illnesses and disabilities. The Mighty shares articles written by authors that have…

Positive Care – a short documentary
Positive Care is a short documentary about the lives of previous and current residents at Laguna Honda's Positive Care Unit in San Francisco.
https://www.youtube.com/watch?v=nTEYPmyXH5g&frags=pl%2Cwn

Pain medication, legalized marijuana and chronic illness
I spoke to Monica who lives with a rare and painful illness called Ehlers-Danlos syndrome. Find out how she copes with the daily problems, what medication she takes, and what it means to her to live in CA where marijuana is now completely legal.
Bild:…

Medical marijuana – a medication in CA, and a drug in Germany
Germany and the US have many apparent differences. However, the gap couldn’t be larger in terms of people discussing marijuana, especially for medical use. Uncountable patients that suffer from chronic pain live in Germany, and many of them…