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Jacob Fraker, a young man with light brown, short hair and a beard is standing in a park and smiles.
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A Rare Disease Advisory Council and Ombudsperson for California!

A few weeks ago, I met Jacob Fraker, a legislative aid of Assemblymember Susan Eggman at the California State Capitol. More importantly, Jacob is part of the rare disease community as well. He has been living with the rare genetic condition…