Black and white image of Karina, a woman with shaved head. She is wearing glitter eye shadow and red lipstick.
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Raising awareness for EDS: Karina is a guest in several podcasts and blogs!

Ehlers-Dan… What? Most people - and sometimes even medical professionals - do not know how to spell Ehlers-Danlos syndrome at all, let alone that they would know anything about the various symptoms that are associated with the rare illness.…
A black and white shot of Jameela, a woman with long black hair who rests her head on her hand
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Interview with The Good Place actress Jameela Jamil

I recently had the pleasure of interviewing actress and advocate Jameela Jamil for ABILITY Magazine. Jameela Jamil is an advocate for social justice, body neutrality, LGBTQ rights, and for a while now, she has also been using her public…
A screenshot of a zoom call with Ian Harding (left), a man with short brown hair and a full beard, and Karina Sturm (right), a woman with shaved brown hair and large, leaf-shaped earrings.
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In conversation with Ian Harding: actor, author, activist

In my role as journalist for ABILITY Magazine and as advocate for the Ehlers-Danlos community, the German organization Chronisch Cool contacted me and connected me to Ian Harding, better known as Ezra Fitz in Pretty Little Liars. Ian is…
Black and white photo of Jade, a young girl with shoulder-long, blonde hair and a tube up her nose. She faces towards her left hand in which she holds part of her IV
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Watch ‘We Are Visible’ online ON DEMAND

My documentary film ‘We Are Visible,’ featuring people living with Ehlers-Danlos syndrome all across the globe, is now available ON DEMAND. Unfortunately, due to COVID-19, most events and film screenings for ‘We Are Visible’…
Jacob Fraker, a young man with light brown, short hair and a beard is standing in a park and smiles.
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A Rare Disease Advisory Council and Ombudsperson for California!

A few weeks ago, I met Jacob Fraker, a legislative aid of Assemblymember Susan Eggman at the California State Capitol. More importantly, Jacob is part of the rare disease community as well. He has been living with the rare genetic condition…
Cassandra, a woman with long, black hair is buying pharmacy productsTrust me, I'm Sick
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Working for Ability Magazine

I have the great honor to be working with Ability Magazine, one of my favorite publications by and for people with disabilities. Some of my work: Director Sarah Stewart and her all-female crew gave great insight into many of the…
Brandon stands outside his apartment with his fist in the air, making a serious face. His t-shirt has Chuck Norris, mid-kick. Chuck's speech bubble on the shirt says "Chuck Norris Always Lives Offensively!"Cheryl Green
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‘Who Am I To Stop It’ – Disability Film Review

One benefit of being a disabled journalist and filmmaker is the passion every member of the community we serve shows for our cause: the accurate representation of disability in media. And as part of this community, I often have the privilege…
Karina, a woman with short black hair and a flower in her hair sits at a podium and answers questions for the audience.Karina Sturm
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Impressions: We Are Visible at Chapman University in Orange, CA

We Are Visible Filmscreening at Chapman University in Orange, CAProf. Beth Haller & Filmmaker Karina Sturm I had the great honor to present my film followed by a short Q&A at Chapman University in Orange, CA. Organized by social…
Lucas and Lotte, two young children, are in their classroom playing on a table. Lucas has blonde hair and wears a red "car" shirt, and Lotte has blonde, long hair bound to a ponytail and wears a white shirt.Karina Sturm
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Press about ’We Are Visible’

Interviews and Podcasts: EDS Awareness Podcast with Dr. Linda Bluestein I had the honor to be interviewed by Dr. Linda Bluestein, an EDS expert for a podcast featured by EDS Awareness. In this interview, we discuss the challenges of making…
Winner Certificate: Festigious Winner, September 2019, International Film Festival, Los Angeles, Honorable Mention: Student Film (Feature), presented to: Karina Ulrike Sturm. We Are Visible
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We Are Visible – Film Awards, Competitions, and Festivals

'We Are Visible,' my first feature-length film about people living with Ehlers-Danlos syndrome all across the globe was accepted into smaller film competitions and awards. Look how well my documentary did. Los Angeles Film Awards September…
Filmed from the end of a room. In front of the room is a large screen showing 'We Are Visible', Karina's film about Ehlers-Danlos syndrome.Jürgen Grunert
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What people say about ‘We Are Visible’

Writers, Journalists & Disability Advocates Caitlin Hernandez This engaging, poignant film captures the triumphs, trials, and truths experienced by several different people living with the same condition. Viewers will come to…
Frequently Asked Questions Button in orange, blue and purplePixabay
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FAQs – We Are Visible

What can I expect of ’We Are Visible’? ’We Are Visible’ is a student film and part of my journalism degree's MA thesis. I am also disabled and live with Ehlers-Danlos syndrome and related conditions myself. As part of my program,…