Eine Frau mit Beanie und Halskrause macht Bilder von Fort Funston in San Francisco und lächelt dabei glücklich.
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About me

Want to get to know me? Watch this short introduction:   Or maybe a little longer?   About me.
Screenshot of the Columbia Journalism Review website. A picture of a laptop, pencil and paper, and der text: "Why disabled journalists should report on disability" can be seen.
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Why disabled journalists should report on disability - Columbia Journalism Review

"Disability reporting needs to improve, and the solution is simple: we need more journalists with disabilities in newsrooms."
Mid-size shot of a woman with short, brown hair and a pink flower in her hair. She is wearing retro-style glasses and a neck brace and talks to a man which we can see from behind.
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Behind the Scenes: Meet the Filmmaker

We Are Visible is a documentary film about people all around the world living with Ehlers-Danlos syndrome (EDS).  You already knew this. What you maybe haven’t realized is that this is not only a film about EDS but also involves a…
Frontalaufnahme einer Frau mit braunen Haaren, die auf beiden Seiten zu einem Zopf gebunden sind. Sie trägt einen warmen Wintersweater.
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We Are Visible - Meet Jojo

We Are Visible is a feature-length documentary film about people all around the world living with Ehlers-Danlos syndrome. Today, I invite you to get a look at one of the incredible humans in this film: Jojo. Jojo is a mom of five children.…
Side view of a woman with short, brown hair holding a camera with a big microphone in front of her face and filming out to the ocean.Frank Marx
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Coming soon: Documentary film about the Ehlers-Danlos syndromes

The Ehlers-Danlos syndromes are a group of rare connective tissue disorders that can affect every part of the body. We Are Visible wants to show the full picture of the condition including the complex presentation of symptoms, to the complications…
Two pictures. On the left is Denise B., a woman wearing a blue shirt, wrist and knee braces. She has short red hair and sits in front of a tree in the forrest. On the right is Rana T., a woman with long brown hair, who has sunglasses on her head, sitting in a park
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Misdiagnoses - an investigative article

Have you ever wondered if you are the only one who has been misdiagnosed by a medical professional in the past? In fact, you are in good company. Diagnostic errors are a global threat, but rarely do we hear about them. For this article, I interviewed…
Sam E. Rubin ist ein junger Mann der vor einem Gemälde sitzt, die eine Katze zeigt. Er blickt nach unten und hat grüne Augen mit langen Wimpern. Sein Haar ist braun und wellig, sein Hemd kartiert.
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Firsts - Episode 3: Sam E. Rubin

Firsts is a mini documentary series about several authors contributing to the book "Firsts - Coming of Age Stories by People with Disabilities" by Belo Cipriani. Please enjoy Episode 3: Sam E. Rubin Version with closed captions:  https://www.youtube.com/watch?v=KYt3ehUk-54   Version…
Caitlin Hernandez, a young woman with brown, straight, shoulder-long hair and brown eyes smiles
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Firsts - Episode 2: Caitlin Hernandez

Firsts is a mini documentary series about several authors contributing to the book "Firsts - Coming of Age Stories by People with Disabilities" by Belo Cipriani. Please enjoy Episode 2: Caitlin Hernandez Version with closed captions:  https://www.youtube.com/watch?v=VffHRQjCkck Version…
David-Elijah Nahmod, ein Mann mit Brille und kurzen, welligen, braunen Haaren sitzt in einem Bürostuhl und trägt ein blaues Hemd.
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Firsts - Episode 1: David-Elijah Nahmod

Firsts is a mini documentary series about several authors contributing to the book "Firsts - Coming of Age Stories by People with Disabilities" by Belo Cipriani. Please enjoy Episode One: David-Elijah Nahmod Version with closed captions:  https://www.youtube.com/watch?v=oEuDbmmLQN0 Version…