Jacob Fraker, a young man with light brown, short hair and a beard is standing in a park and smiles.
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A Rare Disease Advisory Council and Ombudsperson for California!

A few weeks ago, I met Jacob Fraker, a legislative aid of Assemblymember Susan Eggman at the California State Capitol. More importantly, Jacob is part of the rare disease community as well. He has been living with the rare genetic condition…
Cassandra, a woman with long, black hair is buying pharmacy productsTrust me, I'm Sick
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Working for Ability Magazine

I have the great honor to be working with Ability Magazine, one of my favorite publications by and for people with disabilities. Some of my work: Trust me, I'm sick - Review Director Sarah Stewart and her all-female crew gave…
Brandon stands outside his apartment with his fist in the air, making a serious face. His t-shirt has Chuck Norris, mid-kick. Chuck's speech bubble on the shirt says "Chuck Norris Always Lives Offensively!"Cheryl Green
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‘Who Am I To Stop It’ – Disability Film Review

One benefit of being a disabled journalist and filmmaker is the passion every member of the community we serve shows for our cause: the accurate representation of disability in media. And as part of this community, I often have the privilege…
Karina, a woman with short black hair and a flower in her hair sits at a podium and answers questions for the audience.Karina Sturm
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Impressions: We Are Visible at Chapman University in Orange, CA

We Are Visible Filmscreening at Chapman University in Orange, CAProf. Beth Haller & Filmmaker Karina Sturm I had the great honor to present my film followed by a short Q&A at Chapman University in Orange, CA. Organized by social…
Lucas and Lotte, two young children, are in their classroom playing on a table. Lucas has blonde hair and wears a red "car" shirt, and Lotte has blonde, long hair bound to a ponytail and wears a white shirt.Karina Sturm
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Press about ’We Are Visible’

Interviews and Podcasts: EDS Awareness Podcast with Dr. Linda Bluestein I had the honor to be interviewed by Dr. Linda Bluestein, an EDS expert for a podcast featured by EDS Awareness. In this interview, we discuss the challenges of making…
Winner Certificate: Festigious Winner, September 2019, International Film Festival, Los Angeles, Honorable Mention: Student Film (Feature), presented to: Karina Ulrike Sturm. We Are Visible
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We Are Visible – Film Awards, Competitions, and Festivals

'We Are Visible,' my first feature-length film about people living with Ehlers-Danlos syndrome all across the globe was accepted into smaller film competitions and awards. Look how well my documentary did. Los Angeles Film Awards September…
Filmed from the end of a room. In front of the room is a large screen showing 'We Are Visible', Karina's film about Ehlers-Danlos syndrome.Jürgen Grunert
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What people say about ‘We Are Visible’

Writers, Journalists & Disability Advocates Caitlin Hernandez This engaging, poignant film captures the triumphs, trials, and truths experienced by several different people living with the same condition. Viewers will come to…
Frequently Asked Questions Button in orange, blue and purplePixabay
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FAQs – We Are Visible

What can I expect of ’We Are Visible’? ’We Are Visible’ is a student film and part of my journalism degree's MA thesis. I am also disabled and live with Ehlers-Danlos syndrome and related conditions myself. As part of my program,…
Old FilmPixabay
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Screening Events ’We Are Visible’ – Ehlers-Danlos Documentary

I am inviting the Ehlers-Danlos community to join me for several screenings of my feature-length film ’We Are Visible,’ which shows a variety of people living with Ehlers-Danlos syndrome and related conditions all around the globe.  We…
White letters on black background: You are faking it
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We Are Visible – Trailers

Many of the people who know me well would tell you that I am not a person that can do ”short.” I like to talk a lot, prefer to write long articles - the more words, the better, and love to involve more than one person in order to show a…
Karina, a woman with short, brown hair looks into the nothingness. She sits on stairs in the nature and is seen in profile. She wears four earrings. One of those is a dolphin, and the other one a turtle. Additionally, she wears a white-blue scarf around her neck brace.Karina Sturm
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”Nothing about us without us!” – Producing ’We Are Visible’

My film We Are Visible, a feature-length documentary about people living with Ehlers-Danlos syndrome all around the globe, is in its final production phase, and it would be the time to release a trailer now.   However, putting together…
A collage of 9 teenage and adult women and two children who are all contributors of the film We Are Visible
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Ehlers-Danlos documentary: Meet the people involved

We Are Visible is a documentary film about people all around the world living with Ehlers-Danlos syndrome. Today, I invite you to meet the main contributors of my film. Ashley & Sophia  Ashley Ashley is a mom of two, and they…