Posts

In conversation with Ian Harding: actor, author, activist
In my role as journalist for ABILITY Magazine and as advocate for the Ehlers-Danlos community, the German organization Chronisch Cool contacted me and connected me to Ian Harding, better known as Ezra Fitz in Pretty Little Liars. Ian is…

”Nothing about us without us!” – Producing ’We Are Visible’
My film We Are Visible, a feature-length documentary about people living with Ehlers-Danlos syndrome all around the globe, is in its final production phase, and it would be the time to release a trailer now.
However, putting together…

Ehlers-Danlos documentary: Meet the people involved
We Are Visible is a documentary film about people all around the world living with Ehlers-Danlos syndrome. Today, I invite you to meet the main contributors of my film.
Ashley & Sophia
Ashley
Ashley is a mom of two, and they…

Why disabled journalists should report on disability – Columbia Journalism Review
"Disability reporting needs to improve, and the solution is simple: we need more journalists with disabilities in newsrooms."

Behind the Scenes: Meet the Filmmaker
We Are Visible is a documentary film about people all around the world living with Ehlers-Danlos syndrome (EDS).
Furthermore, it also involves a filmmaker that has EDS herself and therefore knows exactly what living with this invisible…

We Are Visible – Meet Jojo
We Are Visible is a feature-length documentary film about people all around the world living with Ehlers-Danlos syndrome. Today, I invite you to get a look at one of the incredible humans in this film: Jojo.
Jojo is a mom of five children.…

Coming soon: Documentary film about the Ehlers-Danlos syndromes
The Ehlers-Danlos syndromes are a group of rare connective tissue disorders that can affect every part of the body.
We Are Visible wants to show the full picture of the condition including the complex presentation of symptoms, to the complications…

Misdiagnoses – an investigative article
Have you ever wondered if you are the only one who has been misdiagnosed by a medical professional in the past? In fact, you are in good company. Diagnostic errors are a global threat, but rarely do we hear about them. For this article, I interviewed…

Firsts – Episode 3: Sam E. Rubin
Firsts is a mini documentary series about several authors contributing to the book "Firsts - Coming of Age Stories by People with Disabilities" by Belo Cipriani.
Please enjoy Episode 3: Sam E. Rubin
Version with closed captions:
https://www.youtube.com/watch?v=KYt3ehUk-54
Version…

Firsts – Episode 2: Caitlin Hernandez
Firsts is a mini documentary series about several authors contributing to the book "Firsts - Coming of Age Stories by People with Disabilities" by Belo Cipriani.
Please enjoy Episode 2: Caitlin Hernandez
Version with closed captions:
https://www.youtube.com/watch?v=VffHRQjCkck
Version…

Firsts – Episode 1: David-Elijah Nahmod
Firsts is a mini documentary series about several authors contributing to the book "Firsts - Coming of Age Stories by People with Disabilities" by Belo Cipriani.
Please enjoy Episode One: David-Elijah Nahmod
Version with closed captions:
https://www.youtube.com/watch?v=oEuDbmmLQN0
Version…

Firsts – The Mini Documentary Series for Belo Cipriani
I had the honor to work with Belo Cipriani, a blind journalist, and advocate for people living with disabilities. Belo recently established a publishing house called Oleb Books whose mission is to represent disability in a respectful and honest…

News pieces for The Mighty
As an editorial intern at The Mighty I also wrote news pieces. The following article is about blind journalist and advocate Belo Cipriani who just opened a new publishing house by and for people with disabilities.
Disability Advocate Belo…