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Popular People With Ehlers-Danlos Syndrome

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Over the last years, more and more famous Hollywood stars have come out with having been diagnosed with Ehlers-Danlos syndrome, sharing their journey on social media and with the press to raise awareness. For EDS Awareness Month, Chronic Pain Partners’ Karina Sturm put together a list with popular fellow zebras, including Billie Eilish, Jameela Jamil, […]

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EDSed Episode 1: The Norris Lab

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EDSed is our new series of full-length interviews with international EDS experts.  These educational interview series with journalistic (news) quality is complementary to our webinar recordings and another free resource we provide for our community. All films are produced by journalist, and We Are Visible filmmaker Karina Sturm and sponsored by Chronic Pain Partners. You […]

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How to report on disability

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Introduction Disability is an abstract concept many non-disabled people cannot fathom. People with disabilities might have a broad spectrum of limitations; they can be any age, gender, and have diverse backgrounds. Their disability can be visible in the shape of a wheelchair, cane, or brace; or it could be invisible – not to be seen […]

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What people say about ‘We Are Visible’

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Writers, Journalists & Disability Advocates This engaging, poignant film captures the triumphs, trials, and truths experienced by several different people living with the same condition. Viewers will come to care about each character and deeply understand the ways in which illness, the public’s ignorance and prejudice, and both internal and external struggles impact those living […]