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25

Cervical Spine Instability

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Cervical Spine Instability Literature Summary: Symptoms, Causes, Diagnostics, Treatment Copyright: Chronic Pain Partners (first published here: https://www.chronicpainpartners.com/cervical-spine-instability-patient-guide/) Written by: Karina SturmReviewed by several medical professionals for accuracy Edition April 2023 [Disclaimer: This is for your information only and not medical advice. Please consult with your healthcare provider before starting any new treatments. This document only […]

26

PT Elan Schneider on Neuroplasticity and New Approaches to Treat Chronic Pain

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Widespread chronic pain is one of the main symptoms for people with any type of Ehlers-Danlos syndrome and can be debilitating. At the same time, many common treatment options, particularly with pain medication, lead to side effects. But what if we could reduce our pain without any negative consequences? Chronic Pain Partners’ Editor-in-Chief Karina Sturm […]

27

EDSed Episode 2: Dr. Lilian Holm on Physical Therapy & EDS

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EDSed is our new series of full-length interviews with international EDS experts. These educational interview series with journalistic (news) quality is complementary to our webinar recordings and another free resource we provide for our community. All films are produced by journalist and We Are Visible filmmaker Karina Sturm and sponsored by Chronic Pain Partners. You can […]

28

Small Fiber Neuropathy is a Common Feature in Hypermobile EDS, Research Finds

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New research by a German group of scientists published in the European Journal of Neurology seeks to understand  if there is an underlying common cause among hypermobile EDS (hEDS), small fiber neuropathy (SFN), and postural orthostatic tachycardia syndrome (POTS). Their research sheds light on a possible common mechanism behind those three conditions.  SFN, POTS & […]

29

Hi, this is me: Karina

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Hello, and welcome to my Blog about all things chronic illness and disability.  My name is Karina, I am a German native but have been residing in San Francisco for six years now, and I live with a variety of chronic conditions, including Ehlers-Danlos syndrome, mast cell activation syndrome, dysautonomia, craniocervical instability, factor VII deficiency, […]

31

EDSed Episode 1: The Norris Lab

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EDSed is our new series of full-length interviews with international EDS experts.  These educational interview series with journalistic (news) quality is complementary to our webinar recordings and another free resource we provide for our community. All films are produced by journalist, and We Are Visible filmmaker Karina Sturm and sponsored by Chronic Pain Partners. You […]

32

Book Review: Holding It All Together When You’re Hypermobile

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For our Chronic Pain Partners Post edition of November 2022, I reviewed author and fellow zebra Christie Cox’s new EDS book called Holding It All Together When You’re Hypermobile. In this article, we will provide more information on the book’s content and what distinguishes Cox’s book from other available Ehlers-Danlos Syndrome resources. [We previously interviewed […]

35

Meghan O’Rourke and The Invisible Kingdom

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As part of our monthly Chronic Pain Partners Post Newsletter, I had the pleasure of speaking with Megan O’Rourke, a fellow Zebra, but more importantly, journalist and author who recently published the bestselling book “The Invisible Kingdom,” highlighting the challenges of living with several chronic conditions, including Ehlers-Danlos syndrome. Meghan O’Rourke is an award-winning writer, poet, and editor, […]

36

Interview with Dr. Pradeep Chopra regarding the psychological and psychiatric aspects of the Ehlers-Danlos syndromes and hypermobility spectrum disorders

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Introduction EDS expert and pain specialist Dr. Pradeep Chopra contacted Chronic Pain Partners to speak about a recently published review on the psychological and psychiatric aspects of Ehlers-Danlos syndrome. Dr. Chopra has been treating complex pain patients with a focus on people with Ehlers-Danlos syndrome for decades and is a passionate advocate for EDSers across the globe. […]