As a journalist, I entirely devoted my life to inform about chronic illnesses and disability, and being personally affected by it not only fueled my passion for this topic but, above all, made me a more empathic journalist and a better human being.
Besides my journalistic work, I see it as my duty to be an advocate for people with the same conditions and to fight for a change by speaking up publicly.
I am fully aware that being a journalist and activist at the same time might create a bias, which is why I constantly reflect on my work, as well as debate my role with peer journalists.
Articles about me
Reha Care (German magazine)
Auf einen Blick (German magazine)
Focus (German magazine)
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Reha Care (German magazine)
I spoke to RehaCare about my wishes and dreams related to my chronic illnesses. -
Auf einen Blick (German magazine)
Auf einen Blick published my way to the diagnosis Ehlers-Danlos syndrome. -
Focus (German magazine)
I talked to Focus about my way to diagnosis.
Videos about me
Neumarkt TV (Local TV)
Bento (German magazine)
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Neumarkt TV (Local TV)
I spoke to Neumarkt TV about my life with Ehlers-Danlos syndrome and my way to diagnosis. -
Bento (German magazine)
Bento interviewed me regarding how I cope with my conditions and how I feel about being disabled as a young woman.
Conferences and events I spoke at
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I am also speaking at conferences. -
In 2017, I gave a public lecture about Ehlers-Danlos syndrome and dental manifestations. -
I spoke in front of 300 people in Münster, Germany. -
Together with Jürgen Grunert, head of the German EDS organization, we represented Ehlers-Danlos syndrome. -
And I even got credit points.
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Even though the consequence of speaking at a conference is bed rest for a week, it is worth it!
Interviews with me
Interview for rare disease day 2019 with BR2:
EDS Awareness Podcast with Dr. Linda Bluestein
Video-Interview with EDS Awareness and Kendra Neilson Myles
If you want to learn more about my recent work as an advocate, you can read more here.
