Two Zebras
Raising awareness for people with rare diseases who are called “zebras”

As a journalist, I entirely devoted my life to inform about chronic illnesses and disability, and being personally affected by it not only fueled my passion for this topic but, above all, made me a more empathic journalist and a better human being. 

Besides my journalistic work, I see it as my duty to be an advocate for people with the same conditions and to fight for a change by speaking up publicly.

I am fully aware that being a journalist and activist at the same time might create a bias, which is why I constantly reflect on my work, as well as debate my role with peer journalists. 


Articles about me


Videos about me


Conferences and events I spoke at


Interviews with me

Interview for rare disease day 2019 with BR2:

EDS Awareness Podcast with Dr. Linda Bluestein

Video-Interview with EDS Awareness and Kendra Neilson Myles

We Are Visible - Q&A with Karia Sturm about Her Recently Released EDS Documentary
Watch this video on YouTube.
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If you want to learn more about my recent work as an advocate, you can read more here.