Two Zebras — Raising awareness for people with rare diseases who are called “zebras”

As a journalist, I entirely devoted my life to inform about chronic illnesses and disability, and being personally affected by it not only fueled my passion for this topic but, above all, made me a more empathic journalist and a better human being.

Besides my journalistic work, I see it as my duty to be an advocate for people with the same conditions and to fight for a change by speaking up publicly.

I am fully aware that being a journalist and activist at the same time might create a bias, which is why I constantly reflect on my work, as well as debate my role with peer journalists.

Articles about me

Reha Care (German magazine)

I spoke to RehaCare about my wishes and dreams related to my chronic illnesses.

Reha Care (German magazine)

Auf einen Blick (German magazine)

Auf einen Blick published my way to the diagnosis Ehlers-Danlos syndrome.

Auf einen Blick (German magazine)

Focus (German magazine)

I talked to Focus about my way to diagnosis.

Focus (German magazine)

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Reha Care (German magazine)

I spoke to RehaCare about my wishes and dreams related to my chronic illnesses.

View More
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Auf einen Blick (German magazine)

Auf einen Blick published my way to the diagnosis Ehlers-Danlos syndrome.

View More
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Focus (German magazine)

I talked to Focus about my way to diagnosis.

View More

Videos about me

Neumarkt TV (Local TV)

I spoke to Neumarkt TV about my life with Ehlers-Danlos syndrome and my way to diagnosis.

Neumarkt TV (Local TV)

Bento (German magazine)

Bento interviewed me regarding how I cope with my conditions and how I feel about being disabled as a young woman.

Bento (German magazine)

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Neumarkt TV (Local TV)

I spoke to Neumarkt TV about my life with Ehlers-Danlos syndrome and my way to diagnosis.

View More
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Bento (German magazine)

Bento interviewed me regarding how I cope with my conditions and how I feel about being disabled as a young woman.

View More

Conferences and events I spoke at

I am also speaking at conferences.

In 2017, I gave a public lecture about Ehlers-Danlos syndrome and dental manifestations.

I spoke in front of 300 people in Münster, Germany.

Together with Jürgen Grunert, head of the German EDS organization, we represented Ehlers-Danlos syndrome.

And I even got credit points.

Even though the consequence of speaking at a conference is bed rest for a week, it is worth it!

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I am also speaking at conferences.
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In 2017, I gave a public lecture about Ehlers-Danlos syndrome and dental manifestations.
<

>

I spoke in front of 300 people in Münster, Germany.
<

>

Together with Jürgen Grunert, head of the German EDS organization, we represented Ehlers-Danlos syndrome.
<

>

And I even got credit points.
<

>

Even though the consequence of speaking at a conference is bed rest for a week, it is worth it!