Writers, Journalists & Disability Advocates
This engaging, poignant film captures the triumphs, trials, and truths experienced by several different people living with the same condition.
Viewers will come to care about each character and deeply understand the ways in which illness, the public’s ignorance and prejudice, and both internal and external struggles impact those living with EDS.Caitlin Hernandez – Blind Writer
A powerful and moving film that shines a light on EDS, a little known disability. We Are Visible offers much food for thought–it has the power to teach the non-disabled to look upon disabilities of all kinds with compassion and understanding. The people who open themselves up for Sturm’s camera do not ask for pity, they simply want to be heard, to be accepted. Their courage and their honesty serves as an education for us all.David-Elijah Nahmod – Disabled Journalist & Film Critic
Your documentary is powerful! You teach the world about your experiences, and the experiences of countless people around the world living with invisible disabilities. I hope many doctors and healthcare professionals watch this so they can be more informed.Haben Girma – Deaf-blind disability rights lawyer, author, speaker
‘We Are Visible’ shines a bright but caring light on two very poorly understood and treated conditions, Ehlers-Danlos Syndrome and the many challenges of having and living with an ‘Invisible Disability’.Jon Rodis – National Disability and Medical Advocate for Rare Disorders
“An insightful documentary about a condition that not many people understand.”Belo Miguel Cipriani – Editor, The Disability Tribune
Film Release in Germany on September 21, 2019.
You found the words that I am always missing.Participant of the annual Ehlers-Danlos conference in Germany by the Ehlers-Danlos Initiative
This student film moved me to tears! Kara so adeptly captured the huge range of issues and gross misunderstanding patients with Ehlers-Danlos experience. I wish the whole world could watch this. I’ve never seen a more underdiagnosed, misunderstood condition, ever. And as an EDS patient myself, I could literally feel the pain of the subjects as they shared their personal stories. Kara is a great budding story teller. I’m so glad she undertook this projectJan – Community Leader – Oh TWIST!
You successfully made the different sides of our condition understandable.Participant of the annual Ehlers-Danlos conference in Germany by the Ehlers-Danlos Initiative
We were all really touched and at first speechless.Participant of the annual Ehlers-Danlos conference in Germany by the Ehlers-Danlos Initiative
No words. The film says it all.Participant of the annual Ehlers-Danlos conference in Germany by the Ehlers-Danlos Initiative
After the film, we were speechless for minutes and so touched. I felt as if you made a film about my life! You found the words and images for all this invisible physical and emotional pain.Group of people at the first film screening in Germany
“We are Visible” is a moving portrait of the journey of Ehlers-Danlos Syndrome survivors from symptoms to diagnosis to management. This international collage of patients and medical providers starkly highlights the similarities of experiences as well as the differences in health care options, support structures, and the stigma of the diagnosis.Sarah H. – Librarian & Advocate
Not only was the story telling masterfully handled, weaving her own diagnostic journey into those of her six international subjects, but their stories were so moving and compelling I was sunk. Bring tissues!Oh Twist! Read the full review here: http://ohtwist.com/becoming-visible
But not one of the six participants in the film felt sorry for themselves. Remarkable strength. The film demonstrated resilience, strength and determination – qualities I believe you need to survive in the EDS world. It shouldn’t be a fight, but for many people it is. We Are Visible is going to be a valuable tool to show the world what living with an invisible illness is really like.Jeannie Di Bon. Read the full review here: https://jeanniedibon.com/wellness/this-film-is-going-to-close-the-gap-on-eds-education/
Find We Are Visible on IMDb here.