What can I expect of ’We Are Visible’?

We Are Visible’ is a student film and part of my journalism degree’s MA thesis. I am also disabled and live with Ehlers-Danlos syndrome and related conditions myself.

As part of my program, I have produced one short film about a nursing home caring for people with HIV in San Francisco and three super-short films about three disabled artists for Belo Cipriani, a blind journalist.

Will ’We Are Visible’ be available for free on YouTube?

At some point yes, but not during the first 1-2 years after the film release. But there will be options to view it. (See next point).

However, I have produced three trailers for you to watch and my vimeo channel additionally offers other short videos related to ‘We Are Visible.’

Where can I see ’We Are Visible?’

Right now, we are in the process of planning screening events all around the globe which people can attend in person. There will also be online events with limited spaces available. And at some point, we hopefully have DVD’s for sale via Ehlers-Danlos organizations, and Video-on-Demand services. However, we are currently in the planning phase and explore affordable options. My event page, as well as my Facebook page will keep you updated.

If you want to host a screening, please contact me

Will ’We Are Visible’ be available in several languages?

Right now, ’We Are Visible’ is available as

  1. A fully accessible English version with closed captions and descriptive audio
  2. A non-accessible English version
  3. A non-accessible German version


This film shows only a small sample of people I spoke to with EDS in parts of Europe and the US who come from a variety of ethnicities, social backgrounds, genders, religions, sexual orientations, and more. That said, it is true that the film showcases stories from several white communities but not people from communities of color. The challenges every one of my main characters has to deal with, I believe, are faced by many people with EDS around the globe. But for those who also face barriers due to racism and things such as transphobia and misogyny, the challenges are only compounded.

As a chronically ill student reaching out to chronically ill people, we had many barriers to scheduling and traveling for this self-funded project. I’m excited that we completed this film. There are very few films about EDS, and my hope is that this film encourages others in the EDS community to film and share their stories that uncover even more diversity and more perspectives.

If you want to learn more about my film,

read all the posts here.

Want to watch the trailers?

Have a look here.

Image: Pixabay

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