I am inviting the Ehlers-Danlos community to join me for several screenings of my feature-length film ’We Are Visible,’ which shows a variety of people living with Ehlers-Danlos syndrome and related conditions all around the globe. 

This poster shows all contributors of the film 'We Are Visible' as pencil sketches around the words: Open your eyes
We Are Visible – Coming soon…

September 2019

Germany – Bad Kissingen

When: September 21, 2019; 8 pm (German time)

The German Ehlers-Danlos Initiative e. V. screens the German version of ‘We Are Visible’ at their annual conference in Bad Kissingen. For more information on how to join the conference, please visit the website of the Ehlers-Danlos Initiative.

You can also join the screening only (without all the expert talks and discussions during the day). For this option please contact vorsitz[at]ehlers-danlos-initiative.de

October 2019

Online Screening – EDS Awareness

When: Saturday, October 19, 2019; 2 pm EST

Chronic Pain Partners exclusively screens an English version (closed captions) of ’We Are Visible’ via their webinar platform once.

Limited to 500 people; no recording of the webinar will be available after the event. This is an exclusive screening only for people who sign up. 

For more information and to sign up for this event, read the announcement by Chronic Pain Partners here.

Online Screening – The Mighty 


When: Saturday, November 9, 2019, 2 PM EST. (Old date: Saturday, October 26, 2019; 12 pm PST is cancelled)

The Mighty exclusively screens an English version (with captions) of ’We Are Visible’ in collaboration with EDS Awareness.

Limited to 500 people; no recording of the screening will be available after the event. This is an exclusive screening only for people who sign up before the event. 

For more information and to sign up for this event, read the announcement by The Mighty here.

January 2020

Boulder, Colorado, US – Event & Q&A

When: Sunday, January 5th, 2020. 2 PM to 5 PM Mountain Time

Screening starts at 2.30 PM, Q&A with the filmmaker via Skype starts at approximately 4.15 PM.

Where: Boulder Public library, main branch. 

This screening event is organized by Nancy Ramsdal for the Boulder EDS support group. If you want to join the life event, please contact me and I connect you to the organizer.

Find the event on Facebook, or in the local newspaper.

Orange, CA, US – Event & Q&A

When: Sunday, January 12, 2020, 2 PM

Where: Chapman University, One University Drive, Orange, CA, 92866, Beckman Hall (Room 404)

This event is hosted by Prof. Arthur W. Blaser and free of charge. The room is wheelchair-accessible.

All attendees, please RSVP, so we know how many people attend. Space is limited.

Schedule: 2 PM: Short introduction by the filmmaker; 2.10 – 3.20 PM: Film screening; 3.20 – 4 PM: Q & A with the filmmaker

RSVP here:


Parking at Chapman University:

Campus Map Chapman University with marked parking lots
Campus Map Chapman University

Please look at the campus map: 


The film screening will be in Building number 3 (the school of business, Beckman Hall).

Visitors can park at two major parking structures:

Lastinger entered from Walnut below Wilson Field, and Barrera, at the corner of Lemon and Sycamore.

Lastinger has accessible parking to the south side of the building. Barrera has accessible parking as well.

Download the PARKING PERMIT:

Black and white shot of a woman with short brown hair looking into the distance. Text: We Are Visible, Film Screening, Oakland.
Oakland Screening We Are Visible

Oakland, CA, US – Event & Q&A

When: Sunday, January 19, 2020, 1.30 PM

Where: 4200 Broadway, Oakland, CA 94611 – Abio Properties

This event is sponsored by The Pain Community and free of charge. The location is wheelchair-accessible.

All attendees need to RSVP. Space is limited to 50 people.


1.30 PM: Short introduction by the filmmaker, Karina Sturm
1:40 – 3.00 PM: Film screening ‘We Are Visible’
3.00 – 4 PM: Q & A with the filmmaker

RSVP here: https://forms.gle/dTsb8pvZwSgShPx97

February 2020

Providence, Rhode Island, US – Event and Q&A

When: New date: February 22, 2020; 2 PM

Where: The public library in North Providence, Rhode Island – 1810 Mineral Spring Ave, North Providence, RI 02904

This event is hosted by Krista Brack and free of charge. The room is wheelchair-accessible.

All attendees, please RSVP to Krista (krista[at]rieds.org)

Following the screening you will be able to ask the filmmaker questions (via Skype)

Penn State Event: We Are Visible Film Screening
Penn State Event: We Are Visible Film Screening

Penn State, Pennsylvania, US – Event

When: February 25, 2020, 6 PM

Where: Penn State University, 3000 Ivyside Park, Altoona, PA  16601

Harry E Slep Student Center, Room: Pondview 

There are several parking lots on campus but please follow your GPS to the above address, which will take you to a parking lot with visitor spots.

This event is hosted by Sue Patterson and free of charge. The room is wheelchair-accessible.

No need to RSVP.

For questions and further information, contact the host Sue directly via sap406[at]psu.edu

Additional event information: https://psualtoona.campuslabs.com/engage/event/5543705

FB Event: https://www.facebook.com/events/188292109084908/

MARCH 2020

DC Event Flyer
DC Event Flyer

Metro DC Support Group Quarterly Meeting – POSTPONED

THE MEETING HAD TO BE POSTPONED as the hosts were concerned about the health of our community related to the recent Coronavirus outbreak.

Where: Altavista Condominium, 900 N. Stafford Street, 8th Floor Lounge, Arlington, VA 22203

Metro Stop: Ballston Metro
Street and garage parking available


Sheri Denkensohn-Trott and Tony Trott, of Happy on Wheels, LLC, are motivational speakers with chronic health issues. They will give a presentation and take questions about developing techniques to cope with life’s challenges.

Film Screening ‘We are Visible’: Filmmaker joins via Skype for a short introduction and then for a Q&A after the screening.

If you would like to join for any part or all of the meeting, please RSVP.

RSVP to eds[at]eds-dc.org

More information: www.eds-dc.org oder https://www.facebook.com/metro.dc.eds

April 2020

Heel, Netherlands – Conference & Q&A – POSTPONED

THE MEETING HAD TO BE POSTPONED as the hosts were concerned about the health of our community related to the recent Coronavirus outbreak.

When: Saturday, April 4th, 2020, 10 AM – 5 PM (CEST, local time)

Where: Cultureel Centrum Don Bosco, Mgr. Savelbergweg 100, 6097 AE Heel, Netherlands.

Janneke Stassen and Monique Vaneerdewegh are organizing this event and ‘We Are Visible’ will be screened at least once throughout the conference. The filmmaker will be available to answer questions at the event.

For more information, please contact the organizers.

May 2020

Johns Hopkins University – Online Screening

When: May 20, 7 PM EDT

Where: Online

Johns Hopkins University in collaboration with EDS Awareness will screen the captioned version of the film. The film screening will be followed by a Q&A with the filmmaker.

Attendees must register to be able to see the film.

Register here: https://attendee.gotowebinar.com/register/898316799769741840

July 2020

Boston, USA – 36th Annual Conference, Marfan Foundation

When: July 9-12, 2020, Film will be shown on July 12 in the morning.

Where: Boston

The film screening will be followed by a Q&A with the filmmaker.

This film screening is part of the Marfan Foundation’s annual conference.

The venue is fully accessible.

Attendees must register to be able to see the film at the conference (for the whole conference or only one day). As an official attendee, you can enjoy the program including the film.

More information: https://www.marfan.org/resources/patients/conference

Registration is not open yet. More information will follow soon.

February 2021

Switzerland – Film Screening

When: To be announced

Where: Pfarreizentrum Wil, Lerchenfeldstrasse 3, CH-9500 Wil

This event is hosted by Jasmin Polsini, head of the organization Ehlers-Danlos Netz Schweiz.

The room is fully accessible and the event is free of charge.

Attendees must sign up. Space is limited.

Sign up here: https://ehlers-danlosnetzschweiz.blogspot.com/p/veranstaltungen.html

March 2021

Germany – Film and Conference

‘We Are Visible’ will be shown at a conference of the Ehlers-Danlos Initiative, followed by a Q&A with the filmmaker.

More Events will follow soon. 

In the meantime, maybe you want to watch my trailers?

Trailer 1: 

Trailer 2: 

Trailer 3: 

If you are interested in an all-accessible screening (captions or descriptive audio), 

please contact me. 

Do you want to host a screening?

Let me know!

Official Website: www.we-are-visible-film.com

Image: Pixabay

7 replies
  1. Adrienne says:

    My name is Adrienne yet my family and friends call me Ana. I was diagnosed with EDS in 2015. I always knew something was wrong yet no one believed me. I can relate to the movie for sure yet I find it hard to relate because I’m a person of color. Every time I’ve tried to research EDS especially when I was first diagnosed there was nothing pertaining to how a person of color lives with the disease. I created my own blog to help those who are of color get through yet it would be nice to see representation of all races when it comes to this disease. With all the new bios and movies that I’m coming across that is speaking more about EDS, the less I see someone who looks like me. I guess it may that I need to do my own filming. Not sure. Just wanted to share how I felt after watching the trailer. Thank you for taking the time to read this. I added my blog via Tumblr just to share my life with you as I battle EDS daily.

    A. Ferron

    • karinabutterfly says:

      Hi Adrienne, I am really sorry that you don’t feel represented by my film. And I have addressed the topic diversity in my FAQs: https://www.karina-sturm.com/en/2019/09/07/faqs-we-are-visible/. But I do want to say something more personal regarding your comment. As someone who is from Germany and moved to the US a couple of years ago, I was pretty much unaware of this whole discussion for a long time. This isn’t an excuse. It’s just something that doesn’t exist where I lived for the longest time of my life. Additionally, I had had major restrictions when filming this project. One was accessibility to people and a very strict timeline; the other major hurdle was money and my own health issues. I did contact a variety of people from all ethnic backgrounds (you might also notice that there are no men in the film, which was not intentional as well), but at some point, I needed to start filming, and that’s how the group of people who are in the film now came together. I did not exclude anyone on purpose, but I absolutely acknowledge what you are saying. I have realized that my culture is different from the American culture, and if I ever make another film for a global audience, I will do better. This being said, I still hope that you might be able to relate to the general challenges the people in my film face. I do believe those issues are quite common no matter our background. I realize, those challenges might be even worse for you, and I hope in the future I will have the chance to represent a wider variety of people. And thanks for adding your blog! If you want, get in touch with me on Facebook and we can talk more about this. Best, Karina

    • karinabutterfly says:

      Hi Ana,

      I thought a lot about your comment over the last months and just today, you crossed my mind again. I am currently working on a comprehensive article about EDS and was wondering if you would feel up to sharing your perspective with me? If so, please send me an e-mail via my contact form on this website.

      I would love to have you in my article as well and am looking forward to talk to you.



  2. Jason Herterich says:

    I am a chronic pain patient (fibromyalgia) and advocate living in Toronto, Canada. I’d love to host a screening here, if at all possible! The trailers look incredible.

    Jason Herterich

    • karinabutterfly says:

      Hi Jason,

      I would love to help you set up a screening. Would you mind contacting me via e-mail, so we can discuss the details?



      PS: Sorry for the late response. I crashed pretty badly last week and was sleeping a lot.

  3. Tina Garnick says:

    Day #whatever on quarantine and run into this. Thank you! I cannot wait to see this film! I am a huge documentary enthusiast and was looking forward to the day I could tell my story to the world and spread awareness. Please let me know how I can watch this asap! My journey is enlightened ?

    • karinabutterfly says:

      Thanks for your interest in my film. You can find all the information on the film’s official website http://www.we-are-visible-film.com.
      It has just been released a few months ago and we are currently in the process of setting up screenings all over the globe. If you look at the event section, you can see where the film will be shown next:
      Unfortunately, due to the recent pandemic, most of the events had to be postponed, but they will happen whenever this is over.

      For this year, the film will only be viewable at those events I mentioned. After the film festival season – and depending on if we make it into one or not – it will also be available on a streaming on demand platform for everyone to watch it online.

      Stay safe!


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