White letters on black background: You are faking it

Many of the people who know me well would tell you that I am not a person that can do ”short.” I like to talk a lot, prefer to write long articles – the more words, the better, and love to involve more than one person in order to show a variety of perspectives. 

These are all the reasons why my documentary We Are Visible has not only one, but three trailers, and I let you choose your favorite. 

We Are Visible is a feature-length film about six families/individuals with Ehlers-Danlos syndrome living all over the world. I found it impossible to give them all the space they deserve in one trailer, and while trying to put THE one together, two others developed. 

Unconventional? I know. But then this whole project doesn’t quite follow the rules of standard journalistic practice. 

Now, please meet my amazing contributors.

Trailer 1 

Trailer 2 – my favorite

Trailer 3 – or more of an introduction

Find out more about We Are Visible 


6 replies
  1. Michelle Van Keulen says:

    My 11 year old son has EDS, he has a 504 for school but the teachers still do not understand what he goes through everyday. How can I get them to understand?

    • karinabutterfly says:

      Hi Michelle, I am so sorry your son’s teachers don’t understand. Unfortunately, I am not much of a help here because I do not have children. However, maybe you could contact the helpline of The Ehlers-Danlos Society or EDS Wellness for help with this. I hope my film helps to make people understand EDS better, and it actually has several children and teenagers included.
      Gentle Hugs,

    • karinabutterfly says:

      Hi Amberly, please check your e-mails again. You should have received an E-Mail by The Mighty stating that the screening has been moved to November 9 at 2 PM EST. It is brought to you in collaboration with EDS Awareness. You should have received another e-mail by EDS Awareness with the link to the screening room in November and the exact instructions. If you have not received it, please send me an e-mail and I will look into it. Sorry for the confusion. Best, Karina

    • karinabutterfly says:

      Hi Heidi, thanks for your interest in my film. If you have a look at the official film website: http://www.we-are-visible-film.com, you can find all current events where you can watch the film there. In the future, the film will also be available on a streaming on-demand platform. Best, Karina


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